show episodes
 
Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder. The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, caregiver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From the latest research to lifestyle tips, our po ...
 
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show series
 
Nicole Kenyon is a person with Type 1 Narcolepsy. She is also a multi-faceted narcolepsy advocate. She is an author of a memoir, a blogger, legislative advocate, personal trainer and the face of @fitniknarcoleptic Instagram where she shares workout routines. In this episode, Nicole shares how she struggled with excessive sleepiness most of her chil…
 
Matthew Horsnell is a person with Type 1 Narcolepsy. He also is a multi-faceted narcolepsy advocate. He’s a speaker, a blogger, legislative advocate and narcolepsy support group leader. In this episode, Matthew and Claire discussed how becoming a dad pushed him to figure out his extreme daytime sleepiness that he dealt with throughout his childhood…
 
Frank Ferrare’s mental health struggles began in adolescence, but a combination of stigma and confusion extended them well into adulthood. The death of a close grandparent led to depression, which began a chain reaction of one ramification leading to another — depression medication, shame around medication, misuse of medication, shame around mental…
 
Grace McGinnis is a college student studying Pre Med, a Division 1 college athlete and also a person with Type 1 Narcolepsy. In this episode, Grace and Claire discuss how Grace functioned as a “sleepy child” and how she was aware at a young age that her experience of sleepiness wasn’t normal. In her sophomore year of high school, her health and per…
 
Nikki Moon has survived a full gamut of severe challenges, including issues with sleep, physical health, mental health and trauma. Specifically, she suffered one of the most devastating traumas a person can face — an incident of sexual assault and rape. Whatever the obstacle, however, Nikki turns pain into power: From her narcolepsy and cataplexy s…
 
Welcome back to Redeeming Disorder. Happy full "supermoon." May we make it to May. 😊 Jonas Otsuji competed on Survivor: One World a decade ago. The deep depression he recalls, however, became a challenge for him long before reality TV, and continued to challenge him after the show. Jonas speaks to the factors that made the challenge even harder – j…
 
Dr. George Church is a Professor at Harvard & MIT, co-author of 580 papers, 143 patent publications & the book "Regenesis"; developed methods used for the first genome sequence (1994) & million-fold cost reductions since (via fluor-NGS & nanopores), plus barcoding, DNA assembly from chips, genome editing, writing & recoding; co-initiated BRAIN Init…
 
Nicole Moore survived a devastating 2013 tornado in Moore, Oklahoma (yes, she is Nicole Moore from Moore). Sadly, her childhood home didn't, and a whirlwind of family struggles prolonged the intense stress she was under. The tornado and its aftermath ultimately amounted to a battle with PTSD, the awareness of which Nicole advocates during our inter…
 
Ginna Freehling is a neuroscience graduate and works in cancer clinical research at a biotech company. She is also a PWN. In this episode, Ginna shares how at the age of twenty she started experiencing symptoms of narcolepsy. In the process of trying to figure out what was going on, she was discouraged by her sleep specialist to not seek a formal d…
 
Dr. Jennifer Gudeman is the Vice President, Medical and Clinical Affairs at Avadel Pharmaceuticals. In this episode, Dr. Gudeman and Claire discuss how Avadel Pharmaceuticals is seeking FDA approval for a once-nightly form of sodium oxybate (FT218) for the treatment of EDS and cataplexy in people with narcolepsy. Dr. Jennifer Gudeman was appointed …
 
Travis Pavlicek is a husband, father of three and his son Cruz is a child with narcolepsy. In this episode, Travis shares how the onset of Cruz’s narcolepsy symptoms escalated within a span of 3 weeks. He details how his family struggled to find a doctor who knew what was going on with Cruz until finally they drove through the night to Mayo Clinic …
 
Michael McRay came to know shame in early childhood, and it nearly killed him. In this episode of Redeeming Disorder, he bravely shares the story of his close encounter with death, and of the immense outpouring of love he found after attempting suicide. Michael's vulnerability gives me the courage to finally share that I was suicidal for a period o…
 
Shamarla Morgan is a PWN and a narcolepsy advocate. In this episode, Shamarla shares how despite a self-diagnosis of narcolepsy type 1 within the first year of her symptoms, it took four years for her to receive a proper diagnosis. She experienced many frustrating interactions with doctors who didn’t take her communication about the disorder and he…
 
Devon VillaCampa returns to the podcast to update us on his artistic and mental health journeys. Not only does he reflect on what he's been through, but he reflects on how reflections themselves change with age — how his perspective evolved in the 1.5 years between appearances on the podcast. Devon finds newfound freedom as he gets older, and newfo…
 
Today we catch up with another previous Redeeming Disorder guest, AJ Mass, who unfortunately lost both his mother and his mother-in-law in the year before this interview. The discussion of that challenge quickly turns into an abstract and philosophical discussion of life, aging, belief and truth. Connect with Reiman: Redeeming Disorder listeners wh…
 
Dr. John Peever is a professor of Cell and Systems Biology at the University of Toronto. In this episode, Dr. Peever shares why he got into narcolepsy and other sleep disorders research. He shares what his latest research is focusing on and how sleep research may influence future narcolepsy treatments. In his efforts through research and the Canadi…
 
Researcher and clinical psychology PhD Amanda Rabinowitz returns to Redeeming Disorder to talk psychiatry, dive deeper into therapeutic techniques (especially CBT and its behavioral activation offshoots) and contemplate a number of murky dichotomies within her field: Nature vs. Nurture Categorical vs. Dimensional Thinking Suppression of vs. Identif…
 
Ginger Zee is the chief meteorologist for ABC News, author, advocate and a person with narcolepsy. In this episode, Ginger shares her journey to being diagnosed with narcolepsy type 2. She also shares about how her mental health was affected by her drug prescriptions to her narcolepsy symptoms. Claire and Ginger discuss how she handles her narcolep…
 
Eric Maisel is a psychotherapist, a PhD in counseling psychology, a creativity coach, and the author of over fifty published books. While I first discovered him through his “Rethinking Mental Health” blog for Psychology Today, his education and work in the field span back far before that — far before I was diagnosed with depression at ten years old…
 
We're back to interviews on Redeeming Disorder! Guided meditations 1-12 will remain up on the podcast for your use whenever you like, and in the meantime, it feels good to get back to real stories of mental disorder. Today's story is a special one whose subject matter hits home for me: Todd Herzog's struggle as an alcoholic. Todd shares the unsung …
 
You did it! Congrats on graduating from this 12-day meditation challenge. Review what you learned anytime through this final meditation tying it all together. I’m wishing you love and well-being in both practice and life. Support Redeeming Disorder by contributing to their Tip Jar: https://tips.pinecast.com/jar/redeeming-disorder…
 
This meditation’s opening quote is from the Pirkei Avot of the Rabbinic Jewish tradition. It is also the last opening quote of the meditation series, as tomorrow's final episode will be 'practice-only.' Turning the page to 2021, I'm wishing you the best in practice, and the best in life! Support Redeeming Disorder by contributing to their Tip Jar: …
 
Today we deepen our practice into one of open, "choiceless" awareness. As you’ve learned in 10 days, attention is a wildly unstable force, and we don’t always get to choose where it goes. In life and in practice, the light of our attention will shine unpredictably on object after object. Can we "choicelessly" accept whatever emerges from the dark? …
 
Begin coming into your own practice and making your own choices! You will choose 1) your primary object of attention; 2) your use of mental noting techniques; and 3) the degree of openness in your practice. Today I guide you into guiding yourself; tomorrow we take your self-directed practice to a new frontier: Open Awareness. This meditation’s open…
 
Where, in your body, do you feel like the ‘you’ is? Your head? Heart? Gut? We continue deeper into embodied practice today, working with exercises of touch points, precise attention and body scans. This meditation’s opening quote is from Luke 17:21 of the Holy Bible. Support Redeeming Disorder by contributing to their Tip Jar: https://tips.pinecast…
 
When you're with a physical sensation, you're with the present moment. Today we start working with a new and simple (but powerful) technique: Body Scanning. This meditation’s opening quote is from the Bhagavad Gita. Support Redeeming Disorder by contributing to their Tip Jar: https://tips.pinecast.com/jar/redeeming-disorder…
 
This challenging meditation marks the halfway point in our 12-day meditation challenge. For the first time, we use primary objects of attention (a.k.a. "anchors" of attention) other than the breath! The opening quote is from the 17th century French mathematician, philosopher and Catholic theologian, Blaise Pascal. Support Redeeming Disorder by cont…
 
Mental Notes:~Feeling, Hearing, Seeing, Smelling, Tasting.~Thinking (including "analyzing," "remembering," "imagining," etc.).~In (or "rising," or alternative).~Out (or "falling," or alternative).~ This meditation’s opening (and closing) haiku is from the 17th century Zen monk and poet, Matsuo Basho. Support Redeeming Disorder by contributing to th…
 
In the practice of Metta, or Loving-Kindness, we wish goodwill toward ourselves, toward others, and ultimately toward all beings. This meditation’s opening quote is from Sri Nisargadatta Maharaj, a Hindu guru of nondualism. May all beings be happy. ❤️ Support Redeeming Disorder by contributing to their Tip Jar: https://tips.pinecast.com/jar/redeemi…
 
Can you see a thought as a thought? Today we introduce the technique of “mental noting” to create some space from our thoughts. This helps us see a thought for what it is — an ephemeral something-or-other that comes and goes, and doesn’t need to be a problem! This meditation’s opening quote is from a film called the Samadhi Movie, which I tweeted o…
 
Learn a basic but powerful concentration technique: Counting Breaths. By counting the breaths, we can cut off the momentum of the trains of thought that pull us away, invite a sense of calm, and establish the conditions necessary for insight. Support Redeeming Disorder by contributing to their Tip Jar: https://tips.pinecast.com/jar/redeeming-disord…
 
There has never been a better time to start meditating than right now. It's no panacea cure for mental disorder, but meditation can transform your consciousness and your experience of the world. In this 12-Day Meditation Challenge, we start from square one; Guided Meditation 1 is an easeful 10-minute introduction. The lengths of our meditations wil…
 
A teacher’s true impact on the world isn’t seen directly, and isn’t measured. It exists instead abstractly, as a butterfly effect projecting through the lives of students they’ve guided. In Cullen’s and my case, this guidance was in sophomore year U.S. History. Yet, it also extended beyond the classroom, in large part thanks to the unconventional c…
 
I met Nate Schorr right after Redeeming Disorder’s first episode; he reached out after hearing me on RHAP (Rob Has a Podcast) because, for him, it was something like two worlds colliding — he was a Survivor fan who also happened to work for one the largest grassroots mental health organization in the world: NAMI. NAMI stands for the “National Allia…
 
Laura Bocianski was my co-host at the start of Redeeming Disorder, and in this 2018 conversation, she returns to the podcast to share her story in greater depth. Be sure to check out Laura's brand new podcast, Invisible Lions! Invisible Lions Podcast: https://www.lauraboach.com/invisible-lions-podcast "Monkeys Pay Per View" Research Paper: https://…
 
Olivia joins me on the podcast to combine two powerful perspectives ― that of a psychiatric nurse, and that of a young woman who's seen mental disorder around her since childhood. She speaks to the struggles of her patients, of her family and of herself, and covers a multitude of topics: Mental health in the LGBTQ community, media depictions of men…
 
Since even before her 2016 TED talk (link below), Lauren has been on a journey of self-discovery, awareness and acceptance. She has built a resilience and introspection through struggles with self-harm as a teenager and with her mental health in general. She's gained a lot of perspective through the difficulty, and now shares her journey ― relives …
 
“I’m not against medication; I’m against medication being positioned as a commercial where there’s a dark cloud over you, you take a pill, and then the sunlight comes out and it’s this miracle pill. Because of those commercials, I spent two and a half years lying in a bed. I wasted two and a half years of my life in hell, chasing a new pill.” — Eri…
 
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