show episodes
 
National Psoriasis Foundation presents Psound Bytes, a podcast series featuring leading experts talking about understanding, managing and thriving with psoriasis and/or psoriatic arthritis. Listen to world renowned dermatologists and rheumatologists discuss the latest news in psoriatic disease management.
 
Chronically Healing started as a space to share the stories of those with chronic illness. As the show has continued, we've morphed into a space for anyone focused on living a holistic, healthy life - realistically. Host Jessie Fritz and her guests have conversations around chronic issues, healing modalities and how to tap into your body to feel your best. We chat with different people all around the world about how to keep yourself healthy and happy throughout your life journey.
 
Podcast hosted by Dawn (DX 2000) and Daana (DX 2004) -- two Black women sharing their musings on life, multiple sclerosis, and everything in between! Dawn and Daana met in 2016 in a Facebook group dedicated to the disease-modifying drug LEMTRADA. Though they live in two different states, in two different parts of the country, through the amazing power of technology, they virtually join each other to share their experiences about living life with MS. They are often joined by noted MS speciali ...
 
The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with ...
 
On the Spectrum of Health Podcast, Dr. Christine Schaffner shares a spectrum of health and wellness information ranging from chronic illness, biological medicine, bioenergetics and more. Dr. Schaffner sits at a unique vantage point in that she sees patients struggling with chronic illness from all over the world in her practice. Dr. Schaffner is passionate about sharing cutting edge information and research from the experts in her community as she sits on the front line of the alternative me ...
 
Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder. The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, caregiver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From the latest research to lifestyle tips, our po ...
 
A monthly podcast where Greg Norman and Jack Vasvary share and discuss great stories related to disability, chronic illness, and mental health within the Star Wars fandom. They cover accessibility, representation, and other topics related to inclusion across the Star Wars fan community and in the Star Wars universe. Part of the Skywalking Network.
 
Headache Specialists from the UK charity National Migraine Centre discuss everything migraine and headache related. This podcast is set up to help give support and advice to those suffering with this largely misunderstood condition. Throughout this podcast you will hear from guest speakers and experts in the medical field, as well as from migraineurs themselves sharing their experiences. Send us your questions or any comments to info@nationalmigrainecentre.org.uk. *** Heads Up artwork by Abi ...
 
Autoimmune Adventures is a podcast dedicated to helping people with autoimmune disorders reclaim their health and their life. The mission is to share cutting edge information and tools for people living with chronic illness and to create a community of support. Episodes will inspire you to say yes to the call to adventure of an autoimmune diagnosis, motivate you to take action to improve your wellness, encourage you on your path, and empower you to recognize the truth of who you are. Topics ...
 
The Kelli Show is a juicy intersection between spiritual and sexual liberation. She helps women break free from a lineage of toxic lies and rules. In these episodes, Kelli will ask you to challenge social norms, encourage you to create your own narrative, and invite you to come back to your evolving truth. Kelli is an Intuitive Facilitator, Reiki and Hypnosis Practitioner, Women’s Circle Facilitator and plant medicine advocate. Disclaimer: If you haven’t yet reviewed our terms of use and pri ...
 
This Too Shall Last features author and therapist K.J. Ramsey (MA, LPC, NCC) and interview guests as they have frank, honest conversations about the hard things in our lives. Glimpse the sacred space of guests' real-life stories and how they are continuing to find grace in suffering—including ongoing mental health issues, trauma and abuse, addiction, chronic illness and chronic pain, grief, loss, and spiritual questioning. Listen in as KJ integrates theology with the field of interpersonal n ...
 
Made Visible is a podcast that gives a voice to people with invisible illnesses. This podcast aims to change the conversation around invisible illnesses, helping those who experience them —whether as patients, caregivers, or friends or family members — feel more seen and heard.
 
Welcome to the Live Well Podcast dedicated to helping those with autoimmune disease get control of their health through diet, lifestyle shifts and personal empowerment. I’m Christina Tidwell your host. I’m a Registered Nurse and Holistic Health Coach who is passionate about bringing together the best of both conventional and complementary approaches to healing. You can learn more about my personal experience with autoimmune disease and The Live Well Program at my website christinatidwell.com
 
The Wellness Crossing is a weekly podcast designed to inspire and empower you to be your best advocate when it comes to health and wellness. We'll talk about various aspects of healing from diet and mindset techniques, to holistic treatments, soul care, and beyond! Join us each week as we pursue healing together!
 
Chronic illness and other health challenges can be a real bummer--but they don't have to be the end of joy and fulfillment. It turns out we can still have epic lives, even when our bodies have plans of their own. Join San Francisco psychotherapist Lauren Selfridge for honest, humorous, and inspiring conversations with people who get what it's like to live with health challenges. Whether you're in the car, on a walk, in the waiting room, or lying in bed, we'll be here to keep you company alon ...
 
Painiac, the first podcast about mindfully living with chronic pain, is a free resource for people living with chronic pain or illness. Painiac is for people living with chronic pain and the awesome people who love them. We also explore what it means to live with various types of pain whether it be emotional, mental, or physical, and we share inspiring stories of other painiacs who are learning to live well even when life hurts. With host Shelly Jackson Buffington, listeners learn about topi ...
 
HOW I’M LIVIN’ WITH CHEF BABETTE! WWPN launches with “How I’m Livin’ with Chef Babette!” a 30-minute podcast that comes out twice a week. Co-host Chef Babette Davis owns Stuff I Eat vegan restaurant in Inglewood, California with husband Rondal Davis. WWPN producer and co-host Marci Kenon checks in weekly with the 65-years-young celebrity chef and fitness enthusiast known as much for her incredible physique as she is known for her vegan soul food platter. Chef Babette is an entrepreneur and s ...
 
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show series
 
One of the things we're most proud of is our commitment to addressing the topic of intimacy and its relationship to MS. Throughout the podcast, we've produced three intimacy series -- "That Part", "This Part" and "These Parts" (Intimacy & MS). Join us today for a retrospective of some of our favorite moments from our intimacy series. You'll hear cl…
 
Hear Dr. Stacie Bell, Chief Scientific and Medical Officer at the NPF discuss palmoplantar psoriasis, dactylitis, enthesitis, plantar faciitis and more with podiatrist and foot and ankle surgeon Dr. Matthew Paden from Rocky Mountain Foot and Ankle Center in Wheat Ridge, CO. Disclosures/credit: https://www.eeds.com/em/2872. This program is supported…
 
Today, Kelli’s sifting through her old experience of success and defining what it means to her now. She invites you to investigate your own relationship to success, sharing prompts for you to dig deep into what that looks like for you and if your definition is serving you in where you are going and how you want to feel. Grab your journal; it’s time…
 
Many children, teens, and occasionally young adults start to show mysterious mental and emotional symptoms that often go undiagnosed. These symptoms begin seemingly overnight with no explanation. The only common denominator is usually that symptoms start soon after an infection. In this episode, Dr. Christine Schaffner talks with one of her colleag…
 
Episode 19: Monica Michelle's Story With EDS, CRPS, MCAS, and POTS In this episode, Monica Michelle discusses her chronic illness story with EDS, MCAS, POTS, Fibromyalgia, CRPS, and more. Monica and Jessica go on a lot of fun soap-box rants about the state of healthcare and disability. They discuss the use of mobility aids, and awesome tips and tri…
 
Lesions, cracks and splits on the feet? Pain in the Achilles tendon?Listen as podiatrist and foot and ankle surgeon, Dr. Matthew Paden from Rocky Mountain Foot and Ankle Center in Wheat Ridge, CO addresses issues related to psoriasis, psoriatic arthritis and foot care. This episode is supported by unrestricted educational grants from Amgen, Bristol…
 
Okay so today I’m talking about hypothalamic pituitary adrenal dysfunction. A mouthful, I know and for ease, it’s called HPA axis dysfunction. If you haven’t heard of HPA axis dysfunction, you may be more familiar with the term ‘adrenal fatigue’. And yes, if you’re thinking adrenal fatigue was sort of debunked as not being real, you’d be correct, b…
 
Today’s episode with Erica Lippy invites you to reflect on your core values, what you truly desire in life, and the question, “Who do I need to become to attract what I desire?” Erica is passionate about helping women reignite their light and connect with their souls to live in an authentically aligned way, and today’s conversation will guide you i…
 
Episode 18: Let's Talk About Postural Orthostatic Tachycardia Syndrome In this episode, we discuss all things POTS. POTS is a type of dysautonomia. The episode discusses the autonomic nervous system as well as the sympathetic and parasympathetic nervous systems and how they play a role in dysautonomia. Symptoms vary widely by person but can include…
 
She's been called "the Maya Angelou of the Millennial generation". Join us for Part 2 of our conversation with the poet, actress, and fellow MSer, Azure Antoinette. We talk about MS, representation, and visibility. Find Azure on Instagram @hello_azureantoinette, Twitter @AzureAntoinette, and her website: azureantoinette.com. Go check out the articl…
 
Psoriasis classification is more than a BSA or PASI score. Listen as Dr. Bruce Strober, Clinical Professor of Dermatology at Yale University, New Haven, CT, and Dr. Andrew Blauvelt, President, Oregon Medical Research Center in Portland, OR, discuss the International Psoriasis Council's rationale for changing psoriasis severity classification for tr…
 
Dr. Grandner is the Director of the Sleep and Health Research Program at the University of Arizona, Director of the Behavioral Sleep Medicine Clinic at the Banner-University Medical Center, and an Associate Professor in the Department of Psychiatry at the UA College of Medicine, with joint appointments in the Departments of Medicine, Psychology (UA…
 
Why do we dream? Do dreams hold psychological meaning or are they merely the reflection of random brain activity? What purpose do dreams serve? Questions on the origins and meaning of dreams are as old as humankind, and as confounding and exciting today as when nineteenth-century scientists first attempted to unravel them. Our brains spend the enti…
 
Episode 17: Dawn Veselka's Story of Raising a Child With Mixed Connective Tissue Disease In this episode, guest Dawn Veselka discusses her experience raising a daughter with a mixed connective tissue disorder. Her mix is juvenile arthritis, scleroderma, Raynaud’s and dermatomyositis. Sadie’s triggers are exposure to viruses, sunlight, and certain f…
 
James and Ashley interview Ruhi Lee, author of the hilarious and heartbreaking memoir 'Good Indian Daughter.' In it, they discuss what it means to be a girl in a South Asian family, the notion of unconditional parental love, and how one generation avoids making the same mistakes as the last. Follow Ruhi on Instagram (@lee_ruhi), and buy a copy of '…
 
"Increasingly we're seeing psoriasis is also a disease of the brain causing depression and anxiety" says Dr. Evan Rieder, dermatologist and psychiatrist at NYU Langone Health. Hear more about this biological connection, forms of anxiety and how cognitive behavioral therapy can help overcome self distortions about living with psoriasis. This episode…
 
So last week I took you guys through the ways in which inflammation, gut health and hormone levels can increase bloating in the lead up to your period. This week I want to give you some tools to actually alleviate that bloating, now you know why it’s happening. I’m going to give you two types of tools, one set to deal with in the moment of bloating…
 
Episode 16: Let's Talk About Marfan Syndrome In this episode, we discuss all things Marfan Syndrome. Marfan Syndrome is a genetic condition that affects the connective tissues. Symptoms include long arms, legs, and fingers, tall and thin body type, curved spine, chest sticking out or in, flexible joints, flat feet, stretch marks, heart conditions, …
 
She's been called "the Maya Angelou of the Millennial generation". Join us for Part 1 of our conversation with the poet, actress, and fellow MSer, Azure Antoinette. We talk about MS, representation, and visibility. Find Azure on Instagram @hello_azureantoinette, Twitter @AzureAntoinette, and her website: azureantoinette.com. Go check out the articl…
 
Exciting new research shows that when the adult brain is damaged it can repair itself. Brain cells that have been injured have the capability of re-growing new connections that, under the right conditions, can help to restore lost function. In this episode, Dr. Christine Schaffner and Dr. Greg Eckel discuss regenerative medicine and the development…
 
Nicole Kenyon is a person with Type 1 Narcolepsy. She is also a multi-faceted narcolepsy advocate. She is an author of a memoir, a blogger, legislative advocate, personal trainer and the face of @fitniknarcoleptic Instagram where she shares workout routines. In this episode, Nicole shares how she struggled with excessive sleepiness most of her chil…
 
Episode 15: Lara Bloom's, of the Ehlers Danlos Society, Story With Ehlers Danlos and Associated Syndromes In this episode, President and CEO of the Ehlers Danlos Society, Lara Bloom shares her story of living with Ehlers Danlos Syndrome. She was diagnosed with EDS at age 24, but was initially misdiagnosed with Marfan’s Syndrome. It took 12 years fo…
 
Transcript: Recently I polled my Instagram to find out just how many of you are suffering with PMS on top of your endo symptoms and the results were pretty staggering! Unfortunately, Instagram didn’t keep the number of votes so I don’t know how many people actually took part in this pole, but the percentage of people who did and who suffer PMS was …
 
In this episode, the NPF Advocacy Team breaks down a new insurance trend called "copay accumulator adjustment programs". These programs make it harder for patients to afford their treatments because copay assistance is no longer counting toward the deductible or out-of-pocket maximum. Request a free copay accumulator adjustment program resource at …
 
Episode 14: Let's Talk About Sickle Cell Disease In this episode, we discuss all things Sickle Cell Disease. Sickle Cell Disease is an inherited red blood cell disorder in which there aren't enough healthy red blood cells to carry oxygen throughout the body. There are multiple types of the disease. Symptoms include pain, swelling of the hands and f…
 
Intimacy extends beyond romantic relationships. Today we're joined by Dr. Aaron Boster, MD, and we chat about one of the most intimate relationships an MSer will ever have -- with their MS specialist. Dr. Aaron Boster, MD is President of The Boster Center for Multiple Sclerosis (bosterms.com). He is a board-certified Neurologist specializing in Mul…
 
Hear Corey's journey with moderate-to-severe plaque psoriasis and the physical, social and emotional impact it had on his life. Dr. April Armstrong, Associate Dean of Clinical Research at the Keck School of Medicine at USC, joins to offer advice for how to manage your symptoms and discusses a treatment option for moderate-to-severe plaque psoriasis…
 
Sleep is required to maintain your immune system, regulate appetite and metabolism, and support cardiovascular health. Also, with chronically ill individuals, it can be a "Catch-22" because sleep is needed to heal, but they can't sleep because of the illness. Fortunately, there have been recent advancements to support restorative deep sleep. In thi…
 
As some of you may know, I’m doing a lot of work at present to free up my pelvic area from adhesions and tightness caused by pulled fascia and a tight pelvic floor, which in physio speak is a hypertonic pelvic floor. So I thought this would be a great time to talk about some strategies you can bring into your daily life to help loosen adhesions and…
 
Episode 13: Smooth Sailing Spoonie ER Visits With Guest Dr. Harvey Castro In this episode, we discuss making ER visits more smooth sailing for spoonies and zebras. Guest Dr. Harvey Castro feels that it is important for the ER docs to spend adequate time with the patient, and for the patient not to have to tell their story repeatedly while in the ER…
 
I’m so excited to introduce you to Shanna Nemrow, FNTP! I found Shanna via YouTube about a year ago when I was dabbling with the AIP diet (Autoimmune Protocol) and loved her authenticity and helpful tricks for living with Hashimoto’s. I asked Shanna to be on the podcast to talk about all things Hashimotos and we definitely dug into some big thyroid…
 
Ashley interviews a mystery guest from the Varuna Writer's House in Katoomba, NSW, where he's midway through a residential fellowship (hint: it's James). An episode for both those who've never been on a residential writing retreat and those who want to reminisce about their time at Varuna! You can learn more about Varuna and the incredible work it …
 
Kelly Brock is a Peace and Business Coach who teaches women how to build a profitable business while creating peace in their lives. Get ready to soak in her nuggets of wisdom on living a life that fills you up by acting the way you want to feel, being in reflection of your needs, and giving yourself permission to change. Kelly shares how she overco…
 
Episode 12: Let's Talk About Endometriosis In this episode, we discuss all things Endometriosis. Endometriosis is a painful disorder where the tissue that typically lives inside the uterus begins to grow outside the uterus. Symptoms can include pain, urinary or bowel symptoms, fatigue, infertility, changes in menstruation, and many others. There ar…
 
Join us for Part 2 of Chapter 4 of our latest intimacy series. Intimacy is about closeness and connection -- not just human connection. The closeness we have with our pets is special-- especially when you have a chronic illness. Today we chat with Damian Washington about his dog Cooper. Find Damian on his website: damianwashington.com and on his vl…
 
Matthew Horsnell is a person with Type 1 Narcolepsy. He also is a multi-faceted narcolepsy advocate. He’s a speaker, a blogger, legislative advocate and narcolepsy support group leader. In this episode, Matthew and Claire discussed how becoming a dad pushed him to figure out his extreme daytime sleepiness that he dealt with throughout his childhood…
 
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