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Talking to others with Vascular Ehlers Danlos Syndrome
The podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain. "Explicitly Sick Podcast" with Monica Michelle + "[Human]care Podcast" with Eva Minkoff Be Kind. Be Gentle. Be A Bad Ass. See acast.com/privacy for privacy and opt-out information.
Meet host Kerry Gabrielson, an attorney passionate about spreading awareness about hypermobility conditions including hypermobile Ehlers-Danlos Syndrome. Guests on the Hypermobility Happy Hour have included world renowned physicians in the field of hypermobility disorders, advocacy experts, leaders of global EDS organizations, and a United States ambassador. Listen in as we examine a wide range of topics, including treatment options for hypermobility disorders and ways to improve the doctor- ...
The podcast for the Journal of the American Academy of Physician Assistants
An interactive podcast to help entrepreneurs grow their businesses by unleashing their natural resilience. Since I’ll be broadcasting these episodes live using the BLAB network. Viewers will be able to post questions during the show. This is a very exciting venture and I hope that you’ll join us. Brian R. King, LCSW is a 27 yr cancer survivor, adult with ADHD & Dyslexia as well as the father of three sons with Asperger's and ADHD. In addition, Brian suffers from Ehlers-Danlos Syndrome Type 3 ...
Advice and suggestions for people with recent onset disabilities or chronic illnesses on how to handle life and all the little things that no one thinks to tell you about beforehand.
The most engaging conversation between health professionals happens in chance meetings in the hallways. During these moments so much is learned .*One Thing* brings together thought leaders in conversation and we share it with health enthusiasts , practitioners,and learners. Our conversations primarily focus on one significant thing in the arenas of gut health, brain health, metabolism, performance, and aging . Support this podcast: https://anchor.fm/adam-rinde/support
The monthly VN Times podcast takes a deep dive into the issues impacting on the veterinary nursing profession. From making the right career choices to dealing with disability – it's no holds barred with editor Rachael Buzzel.
Professional guidance and support every step of the way, from choosing a candidate to all aspects of training, including basic, advanced, and off-leash, public access, service dog skills and service dog tasks. Find out more about our puppies at HopeServiceDogs.org & our training at HeartSoulK9.com. Victoria is a graduate of NePoPo® Gold Premium School and is a certified NePoPo® trainer. She also holds many other dog training certifications. NePoPo® is a registered Service Mark of Bart Bellon ...
This is a podcast has two main features - a filthy mouth and a mission. With our Charity Swear Jar, we aim to put our horrendous vocabulary to good use.
Wait how do you spell that? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We're definitely not doctors, and we can't give you medical advice. We're just here to chat and laugh and learn about issues that impact people living with diseases our doctors can't to spell.
Dear Friends & Family is a show about living a full life with chronic illness with your hosts Patty & Lex. Patty lives with Fibromyalgia & Lex lives with Small Fiber Neuropathy. Together they explore the topics of life, love, and happiness with other people living a life involving illness. This show is to remind anyone dealing with illness in their day to day lives, whether they are the caretaker or the person with illness, that they are not alone. It's a serious topic with an upbeat feel. P ...
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One Thing with Dr. Adam Rinde
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Integrative Approaches to Ehlers Danlos Syndrome With Dr. Jessica Pizano and Sabrina Vaz
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In this episode we speak with a repeat guest Dr. Jessica Pizano who a doctor of clinical nutrition and her clinical teammate Sabrina Vaz who is an expert in Pilates. They are from Mast Cell Advanced Diagnosis and their unique focus on mast cell disorders brings them in close interaction with patients with Ehlers Danlos Syndrome (EDS). EDS is a conn…
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One Thing with Dr. Adam Rinde
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Meditation with Solomon Ezra Berezin
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In this episode I welcome Solomon Ezra Berezin, a health coach from Houston , Texas to speak about meditation and its role in performance and health. More information can be found at www.soundintegrative.com in our blog section. This episode covers: Meditation unpacked, different forms, and benefits. Vipassana meditation Equanimity; what is it and …
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Invisible Not Broken - Chronic Illness Podcast Network
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Roundtable - Throwback to Ep 100! Managing from Mattress: Monica and Eva
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THROWBACK TO OUR 100TH EPISODE: Managing from Mattress with Eva Minkoff and Monica Michelle. In this episode, we talk about our individual experiences & tips for managing our flares on our "bed bound" days. Since the two of us have varying degrees of illness severity and mattress-bound frequency, this episode covers much of the spectrum of experien…
This month we’re going to talk about some heavy stuff that a lot of us experience, especially during the holiday season: we’re going to talk with musician Amy McNally about ways she copes with depression and suicidal ideation, both with formal medical and psychological treatment and in ways she deals with it apart from that. Click through for links…
Melinda’s 11 year-old daughter, Nataleigh, was diagnosed with VEDS, or Vascular Ehlers-Danlos Syndrome, after 8 1/2 years of medical issues that finally led to a genetics appointment. At first, she was diagnosed with hypermobile EDS, but Melinda pushed for a genetic test to rule out VEDS and she unexpectedly came back positive. Melinda shares what …
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Service Dog Secrets - with Victoria Warfel
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How disabled must you be for a service dog?
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How disabled must/should you be for a service dog?
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JAAPA Podcast
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December 2020: Inherited Cancer Syndromes, Cleft Lip and Palate, Mucormycosis, Cervical Cancer
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In the December 2020 episode of the JAAPA Podcast, co-hosts Kris Maday, PA-C and Adrian Banning, PA-C discuss CME articles covering inherited cancer susceptibility syndromes and reviewing cleft lip and palate. They also explore a case of mucormycosis in an immunocompromised patient and give a quick review of cervical cancer. Plus, this is the last …
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Invisible Not Broken - Chronic Illness Podcast Network
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Roundtable - Spoonie Gifting: Monica, Eva and Jason
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Another sort of Holiday Special roundtable on gifting for people with chronic illness & disability! JOIN INB NETWORK HOSTS MONICA (EXPLICITLY SICK), EVA (HUMANCARE) & JASON (DISCOMFORT ZONE) FOR A FUN DISCUSSION ON OUR PERSONAL GIFTING IDEAS. “A little effort goes a really long way” – Jason Herterich Gift ideas mentioned throughout the episode: *No…
Following the monster success of our first VN Happy Hour event, we decided to do it all over again – and our second event took place on 26 November 2020.For those that missed the event, however, this podcast includes “Exotic encounters: fFrom lizards to llamas” – our big interview with VN Council chair and leading exotics nurse, Matt Rendle.Also, c…
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Watch Your Mouth Podcast
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Watch Your Mouth - Semester Wrap Up 2020 - Ep 170
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Summary: The Lads are reflecting / sharing your comments, calls and zombie game entries on this year long semester of 2019-2020! Listen in and find out who our new honor roll inductee is for this semester too!***Don't forget you can call and leave a message swearing up a shit storm for the foul-mouthed philanthropists! Calls will be aired on future…
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Wait, how do you spell that?: A rare disease podcast
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20 Years of Connections: The Glanzmann's Research Foundation
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In this episode, Colby speaks with Taylor Anne Burtz and Peter Zdziarski of the Glanzmann's Research Foundation. Glanzmann's thrombasthenia is rare genetic condition characterized as a blood clotting disorder. Taylor and Peter discuss their personal experiences with the condition and the foundation's goals of connecting patients and advancing resea…
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One Thing with Dr. Adam Rinde
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Biofilm in human health . Dr. Deanna Berman
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Biofilm are communities of bacteria that form in many places in the body including the lumen of the gut where bacteria transition from a free forming and moving organism into joining a community of bacteria living in a unit called biofilm. Biofilms are most acknowledged in dentistry as the purpose of flossing is largely to disrupt biofilm. Also, th…
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Service Dog Secrets - with Victoria Warfel
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How to Train Your Puppy (what to focus on in the beginning)
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There is so much to teach your puppy - he knows nothing! What do you want to "put your money" on, and how do you teach everything he needs to know.
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Service Dog Secrets - with Victoria Warfel
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Environment Exposure, Socialization, Your Puppy & A Global Pandemic
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How do you socialize your pup, properly, during a pandemic?
Morgan’s son, Cameron, was diagnosed in July 2019 with Vascular Ehlers-Danlos Syndrome (VEDS), at 10 years old. This diagnosis came after Morgan continued to press for answers several years after his father, Mike, passed away from a sudden aortic dissection. Morgan shares how they’ve coped with the diagnosis, as well as the advocacy work she has do…
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Invisible Not Broken - Chronic Illness Podcast Network
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Roundtable - Holiday Survival Tips (Holding Nothing Back!)
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Join Monica, Eva and Dr. Lee for an untamed discussion on politics, human rights, family dynamics and, oh yeah, some holiday stuff thrown in there :p "Take it or leave it - I have an opinion" (all of us in a nutshell) Just a taste of what we talk about: Election results & compassion for human rights Love languages, sex and the "diamond rule" vs. th…
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JAAPA Podcast
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November 2020: Prostatic Urethral Lift vs TURP, Potentially Malignant Oral Lesions, Anti-NDMA Receptor Encephalitis, PA Gender Wage Gap
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In the November 2020 episode of the JAAPA Podcast, co-hosts Kris Maday, PA-C and Adrian Banning, PA-C discuss a CME article on the efficacy of prostatic urethral lift versus transurethral resection of the prostate. They also examine an article on potentially malignant oral lesions and explore a case of anti-NDMA receptor encephalitis. Then, our co-…
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Invisible Not Broken - Chronic Illness Podcast Network
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(Sex & Chronic Illness Podcast): Introducing Dr. Lee Philips!
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EPISODE 1: MEET DR. LEE PHILLIPS! Dr. Phillips introduces himself to the listeners and shares his personal battle with Lyme disease and how he became an AASECT Certified Sex Therapist. He shares with the listeners the purpose of his podcast, and this episode he also discusses the stages of chronic illness and how this will be talked about on future…
Sunni speaks with Adam Settle and his family about the new book chronicling Adam's life with cobalamin C deficiency. The genetic condition can cause blindness, nervous system issues and other symptoms. Learn more about Adam and his book here: https://adamsettle.wordpress.com/ As mentioned in the intro, check out the "Fight the Swell" HAE podcast on…
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Service Dog Secrets - with Victoria Warfel
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After our NePoPo® Service Dog School with Victoria Warfel.... on the way to Universal Studios
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Such a long week! Going to relax at Universal.
Why certification is essential.
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Service Dog Secrets - with Victoria Warfel
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Prepping for our NePoPo® Service Dog School - with Victoria Warfel, Guardian Homes, Breeds and more
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So much that we cover in this episode
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VN Times Podcast
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Ep 10: Caroline Peacock on Pet Blood Bank UK
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VN Times editor Rachael Buzzel is joined by RVN and veterinary manager at Pet Blood Bank UK (PBBUK) Caroline Peacock.Caroline tells us all about her work with the UK charity set up to support vets by providing a blood service for pets, and the vital role of the VN in its work.To find out more about how you can get involved with the charity, read “P…
Welcome to the next episode of WIALD , a feature of The One Thing Podcast, that stands for What I AM LEARNING DAILY. Today, I speak about Hydrogen Sulfide Breath Testing which may be the missing gas or missing link in identifying dysbiosis, sibo, or IBS factors. I recently learned a lot about it and I am excited to share. #ibs #sibo #dysbiosis --- …
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Wait, how do you spell that?: A rare disease podcast
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Ilana's New Journey and Ehlers-Danlos Syndrome
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In this episode, we say goodbye to Patient Worthy managing editor Ilana. Colby and Ilana also discuss Ehlers-Danlos Syndrome and why diagnosis can be such a long road for patients.By waithowdoyouspellthatraredisease
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Invisible Not Broken - Chronic Illness Podcast Network
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Trailer for Discomfort Zone - The Night of the Speech
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A sneak peek from Episode 10 of Discomfort Zone You can subscribe to Discomfort Zone on your favorite podcast player, including: Apple Podcasts Spotify Google Podcasts Episode Description: I was too sick to attend my sister's wedding, so she wasn't expecting me to deliver a speech. Follow Discomfort Zone on Facebook, Instagram, and Twitter See acas…
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Tips and Tricks on How to Be Sick
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02-01 We're back for Season 2! Administrative notes on our hiatus and then we talk dysautonomia
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In honor of Dysautonomia Awareness Month, we’re going to discuss dysautonomia and the ways it can present in different people, both on its own and in conjunction with other disorders. What is dysautonomia? Well, it’s a dysfunction of the autonomic nervous system, which tells you nothing unless you know a little bit about how the autonomic nervous s…
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JAAPA Podcast
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October 2020: Cardiac Amyloidosis, Sickle Cell Disease, Hyponatremia, Dental Prophylaxis in Patients with Orthopedic Implants
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In the October 2020 episode of the JAAPA Podcast, co-hosts Adrian Banning, PA-C and Kris Maday, PA-C discuss CME articles on cardiac amyloidosis and on sickle cell disease. They also break down a QRS article on hyponatremia and explore the role of antibiotics for dental prophylaxis in patients with orthopaedic implants. Full articles can be found a…
We've got an INB Roundtable! Dr. Lee was a minor league mascot, Monica played fetch with coyotes, and Jason blew his chance at hand modeling. Two are true, one is a lie! Get to know the hosts through a fun icebreaker game. Click here for the show notes. Listen and subscribe to: Explicitly Sick with Monica Humancare with Eva Discomfort Zone with Jas…
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Invisible Not Broken - Chronic Illness Podcast Network
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Trailer for Humancare - You Don't Know What You Don't Know: Tami Stackelhouse
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A sneak peak of this week's episode of Humancare Podcast You can subscribe to Humancare on your favorite podcast player, including: Apple Podcasts Spotify Google Podcasts Episode Description Eva was joined this week by Tami Stackelhouse, a Fibromyalgia Coach, fellow podcast host & Author. Tami has Fibromyalgia, Hashimoto’s thyroiditis, chronic dail…
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One Thing with Dr. Adam Rinde
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Disorders of Gut Brain Interactions with Dr. Douglas Drossman and Johannah Ruddy M.Ed.
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Receiving diagnosis like Irritable Bowel Syndrome (IBS), often comes with a stigma. Some believe IBS is a diagnosis a doctor uses to describe digestive symptoms when no serious pathology has been found. Thankfully we are moving a way from this definition. And now we recognize that conditions like IBS involved scientifically proven imbalances in bot…
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Service Dog Secrets - with Victoria Warfel
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Fluffy, Universal & SeaWorld, Genetics and why it matters
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Recap of our awesome weekend at SeaWorld with Gypsy & Ross, and Universal with Gypsy & Fluffy (his first visit!). How to make your service dog in trainings first outings easier. Genetic issues & why testing matters. heartsoulk9.com
Patrick was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) earlier this year by the National Institutes of Health (NIH) at 54 years of age following whole exam sequencing. With a history of bowel complications and perforations, as well as two other rare conditions, Patrick was grateful to be welcomed by the VEDS community when he was diagnos…
Do service dogs really NEED to use an e-collar?
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One Thing with Dr. Adam Rinde
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A Fat Loss Lifestyle with Alex Leaf, MS, CISSN
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There is an obsession in this world with weight loss. The search term “weight loss” outpaces the search term “fat loss” by leaps and bounds. In fact, on May 3, 2020, “weight loss” reached the most popular search term status on google in The United States. Reaching a popularity score of 100/100. On the same day the term “fat loss” only had a popular…
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Wait, how do you spell that?: A rare disease podcast
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Danny's Dose: Prepare for the Worst and Work Toward the Best
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In this episode, Ilana and Rebekah talk with Darlene Shelton, the founder of Danny's Dose. It's a nonprofit dedicated to changing emergency medical protocols for chronic illness and rare disease patients. This conversation was recorded at the NIH Rare Disease Day in Februrary, 2020 -- the last in our series of conversations with patients on the fro…
After 2 months in Missouri (at NePoPo® with Michael & Bart Bellon), I'm home. In this episode, we give you pup-dates on Hope Service Dog's breeding program, along with hot spot advice, some take aways from school, and much more. HeartSoulK9.com
Chronic Joint Pain often leads to a diagnosis of degenerative joint disease (also known as osteoarthritis) and patients are given the array of physical therapy and anti-inflammatories with the hope of delaying and preventing joint replacement surgery. This is a standard approach and joint replacement procedures often need to be redone 10-20 years l…
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Wait, how do you spell that?: A rare disease podcast
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Rare Reflections: How Illustrator J.G. Jones is Bringing Attention to MPN Patients Through Art
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In this episode, Sunni talks with illustrator J.G. Jones, who has worked as a comic book artist for almost 25 years. Jones, who was diagnosed with a type of rare blood cancer, is working on a new project that is bringing attention to myeloproliferative neoplasm patients through a combination of story and illustration.…
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Invisible Not Broken - Chronic Illness Podcast Network
1
Roundtable Episode - COVID-19 Stories
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We've got an INB Roundtable! Monica and Eva are joined by the two new hosts on the network: Jason, host of Discomfort Zone and Dr. Lee, host of Sex and Chronic Illness. The four of us chat about: Our go-to coping mechanisms Striking a balance with news and social media intake Using COVID as a time to reflect The impact COVID has had on relationship…
Danjela received her diagnosis of Vascular Ehlers-Danlos syndrome, or VEDS, just two months prior to the recording of this podcast. After her mom suddenly died of an aortic rupture, Danjela started researching and discovered Vascular EDS. She pushed her doctors for genetic testing, which took a couple months of convincing, but her test results came…
BIG Official Announcement We're now a Podcast Network! That means we now have 4 separate podcasts as part of our Invisible Not Broken Family: Explicitly Sick - hosted by Monica Michelle Humancare - hosted by Eva Minkoff Discomfort Zone - hosted by Jason Herterich Sex & Chronic Illness - hosted by Dr. Lee Phillips We will be continuing to publish ne…
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JAAPA Podcast
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September 2020: Infectious disease considerations in immunocompromised patients, bronchiolitis, necrotizing fasciitis and a QRS on pyelonephritis
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In the September 2020 episode, Kris Maday, PA-C, and Adrian Banning, PA-C, discuss CME articles on infectious disease considerations in immunocompromised patients and bronchiolitis as well as necrotizing fasciitis and a QRS on pyelonephritis.
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Wait, how do you spell that?: A rare disease podcast
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Rarest of the Rare: Neena Nizar and the Jansen's Foundation
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In this episode, Ilana has a conversation with Jansen's Foundation president and founder Neena Nizar. Jansen's Disease is one one of the rarest disorders in the world, with Neena reporting only 10 known cases worldwide when she started her foundation in 2017. This interview was recorded in February 2020 at NIH Rare Disease Day. Since then, Neena re…
Idan Ravin Esq., MSc, CSCS is an elite performance coach for many of the top NBA players. He is also the author of The Hoops Whisperer and It Takes Patience. Idan has a very unique life journey and also a gift for the craft of improving and fine tuning performance. Whether you are trying to improve your fitness, health, or life situation I think yo…
Erica was diagnosed with Vascular Ehlers-Danlos syndrome, or VEDS, about eight and half years ago after a series of life-threatening medical events and the birth of her son, Reed. She discusses her colon ruptures, uterine rupture, and the discovery of 5 aneurysms that finally led to her diagnosis of VEDS. She talks about how her faith, her husband,…
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One Thing with Dr. Adam Rinde
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The Bile and Mold Connection with Dr. Jill Crista
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Bile and biliary dysfunction are intimately connected with mold-related illness. In fact, so connected that a key strategy to overcome mycotoxin illness is to help your bile rid of mycotoxin. Bile does so much in our body . Not only is it important in fat digestion and absorption; it also has secondary effects on protecting our gut lining, immune s…
VN Times sits down with Linnaeus chief nursing officer Andrea Jeffery to talk Schedule Three and what it means for the future of the veterinary nursing profession.Andrea discusses how proposed legislative changes could have the biggest impact on this crucial role in decades.By VN Times
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Wait, how do you spell that?: A rare disease podcast
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A Disease Advocate Gets Personal About Diagnosis and Treatment Denials
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In this episode, managing editor Ilana Bean talks with disease advocate Whitney Carter about her journey to multiple diagnosis and how it led her to getting involved patient awareness. Recorded at the NIH Rare Disease Week in February 2020.By waithowdoyouspellthatraredisease
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JAAPA Podcast
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August 2020: Adult ADHD, Low back pain, Stevens-Johnson syndrome and topic epodermal necrolysis, Skin lesion
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In the August 2020 episode, Kris Maday, PA-C, and Adrian Banning, PA-C, discuss CME articles on ADHD and low back pain as well as articles on Stevens-Johnson syndrome and toxic epidermal necrolysis and a case about a curious skin lesion.
