show episodes
 
Meet host Kerry Gabrielson, an attorney passionate about spreading awareness about hypermobility conditions including hypermobile Ehlers-Danlos Syndrome. Guests on the Hypermobility Happy Hour have included world renowned physicians in the field of hypermobility disorders, advocacy experts, leaders of global EDS organizations, and a United States ambassador. Listen in as we examine a wide range of topics, including treatment options for hypermobility disorders and ways to improve the doctor- ...
 
An interactive podcast to help entrepreneurs grow their businesses by unleashing their natural resilience. Since I’ll be broadcasting these episodes live using the BLAB network. Viewers will be able to post questions during the show. This is a very exciting venture and I hope that you’ll join us. Brian R. King, LCSW is a 27 yr cancer survivor, adult with ADHD & Dyslexia as well as the father of three sons with Asperger's and ADHD. In addition, Brian suffers from Ehlers-Danlos Syndrome Type 3 ...
 
The most engaging conversation between health professionals happens in chance meetings in the hallways. During these moments so much is learned .*One Thing* brings together thought leaders in conversation and we share it with health enthusiasts , practitioners,and learners. Our conversations primarily focus on one significant thing in the arenas of gut health, brain health, metabolism, performance, and aging . Support this podcast: https://anchor.fm/adam-rinde/support
 
Professional guidance and support every step of the way, from choosing a candidate to all aspects of training, including basic, advanced, and off-leash, public access, service dog skills and service dog tasks. Find out more about our puppies at HopeServiceDogs.org & our training at HeartSoulK9.com. Victoria is a graduate of NePoPo® Gold Premium School and is a certified NePoPo® trainer. She also holds many other dog training certifications. NePoPo® is a registered Service Mark of Bart Bellon ...
 
Wait how do you spell that? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We're definitely not doctors, and we can't give you medical advice. We're just here to chat and laugh and learn about issues that impact people living with diseases our doctors can't to spell.
 
Dear Friends & Family is a show about living a full life with chronic illness with your hosts Patty & Lex. Patty lives with Fibromyalgia & Lex lives with Small Fiber Neuropathy. Together they explore the topics of life, love, and happiness with other people living a life involving illness. This show is to remind anyone dealing with illness in their day to day lives, whether they are the caretaker or the person with illness, that they are not alone. It's a serious topic with an upbeat feel. P ...
 
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show series
 
In this episode we speak with a repeat guest Dr. Jessica Pizano who a doctor of clinical nutrition and her clinical teammate Sabrina Vaz who is an expert in Pilates. They are from Mast Cell Advanced Diagnosis and their unique focus on mast cell disorders brings them in close interaction with patients with Ehlers Danlos Syndrome (EDS). EDS is a conn…
 
In this episode I welcome Solomon Ezra Berezin, a health coach from Houston , Texas to speak about meditation and its role in performance and health. More information can be found at www.soundintegrative.com in our blog section. This episode covers: Meditation unpacked, different forms, and benefits. Vipassana meditation Equanimity; what is it and …
 
THROWBACK TO OUR 100TH EPISODE: Managing from Mattress with Eva Minkoff and Monica Michelle. In this episode, we talk about our individual experiences & tips for managing our flares on our "bed bound" days. Since the two of us have varying degrees of illness severity and mattress-bound frequency, this episode covers much of the spectrum of experien…
 
This month we’re going to talk about some heavy stuff that a lot of us experience, especially during the holiday season: we’re going to talk with musician Amy McNally about ways she copes with depression and suicidal ideation, both with formal medical and psychological treatment and in ways she deals with it apart from that. Click through for links…
 
Melinda’s 11 year-old daughter, Nataleigh, was diagnosed with VEDS, or Vascular Ehlers-Danlos Syndrome, after 8 1/2 years of medical issues that finally led to a genetics appointment. At first, she was diagnosed with hypermobile EDS, but Melinda pushed for a genetic test to rule out VEDS and she unexpectedly came back positive. Melinda shares what …
 
In the December 2020 episode of the JAAPA Podcast, co-hosts Kris Maday, PA-C and Adrian Banning, PA-C discuss CME articles covering inherited cancer susceptibility syndromes and reviewing cleft lip and palate. They also explore a case of mucormycosis in an immunocompromised patient and give a quick review of cervical cancer. Plus, this is the last …
 
Another sort of Holiday Special roundtable on gifting for people with chronic illness & disability! JOIN INB NETWORK HOSTS MONICA (EXPLICITLY SICK), EVA (HUMANCARE) & JASON (DISCOMFORT ZONE) FOR A FUN DISCUSSION ON OUR PERSONAL GIFTING IDEAS. “A little effort goes a really long way” – Jason Herterich Gift ideas mentioned throughout the episode: *No…
 
Following the monster success of our first VN Happy Hour event, we decided to do it all over again – and our second event took place on 26 November 2020.For those that missed the event, however, this podcast includes “Exotic encounters: fFrom lizards to llamas” – our big interview with VN Council chair and leading exotics nurse, Matt Rendle.Also, c…
 
Summary: The Lads are reflecting / sharing your comments, calls and zombie game entries on this year long semester of 2019-2020! Listen in and find out who our new honor roll inductee is for this semester too!***Don't forget you can call and leave a message swearing up a shit storm for the foul-mouthed philanthropists! Calls will be aired on future…
 
In this episode, Colby speaks with Taylor Anne Burtz and Peter Zdziarski of the Glanzmann's Research Foundation. Glanzmann's thrombasthenia is rare genetic condition characterized as a blood clotting disorder. Taylor and Peter discuss their personal experiences with the condition and the foundation's goals of connecting patients and advancing resea…
 
Biofilm are communities of bacteria that form in many places in the body including the lumen of the gut where bacteria transition from a free forming and moving organism into joining a community of bacteria living in a unit called biofilm. Biofilms are most acknowledged in dentistry as the purpose of flossing is largely to disrupt biofilm. Also, th…
 
Morgan’s son, Cameron, was diagnosed in July 2019 with Vascular Ehlers-Danlos Syndrome (VEDS), at 10 years old. This diagnosis came after Morgan continued to press for answers several years after his father, Mike, passed away from a sudden aortic dissection. Morgan shares how they’ve coped with the diagnosis, as well as the advocacy work she has do…
 
Join Monica, Eva and Dr. Lee for an untamed discussion on politics, human rights, family dynamics and, oh yeah, some holiday stuff thrown in there :p "Take it or leave it - I have an opinion" (all of us in a nutshell) Just a taste of what we talk about: Election results & compassion for human rights Love languages, sex and the "diamond rule" vs. th…
 
In the November 2020 episode of the JAAPA Podcast, co-hosts Kris Maday, PA-C and Adrian Banning, PA-C discuss a CME article on the efficacy of prostatic urethral lift versus transurethral resection of the prostate. They also examine an article on potentially malignant oral lesions and explore a case of anti-NDMA receptor encephalitis. Then, our co-…
 
EPISODE 1: MEET DR. LEE PHILLIPS! Dr. Phillips introduces himself to the listeners and shares his personal battle with Lyme disease and how he became an AASECT Certified Sex Therapist. He shares with the listeners the purpose of his podcast, and this episode he also discusses the stages of chronic illness and how this will be talked about on future…
 
Sunni speaks with Adam Settle and his family about the new book chronicling Adam's life with cobalamin C deficiency. The genetic condition can cause blindness, nervous system issues and other symptoms. Learn more about Adam and his book here: https://adamsettle.wordpress.com/ As mentioned in the intro, check out the "Fight the Swell" HAE podcast on…
 
VN Times editor Rachael Buzzel is joined by RVN and veterinary manager at Pet Blood Bank UK (PBBUK) Caroline Peacock.Caroline tells us all about her work with the UK charity set up to support vets by providing a blood service for pets, and the vital role of the VN in its work.To find out more about how you can get involved with the charity, read “P…
 
Welcome to the next episode of WIALD , a feature of The One Thing Podcast, that stands for What I AM LEARNING DAILY. Today, I speak about Hydrogen Sulfide Breath Testing which may be the missing gas or missing link in identifying dysbiosis, sibo, or IBS factors. I recently learned a lot about it and I am excited to share. #ibs #sibo #dysbiosis --- …
 
A sneak peek from Episode 10 of Discomfort Zone You can subscribe to Discomfort Zone on your favorite podcast player, including: Apple Podcasts Spotify Google Podcasts Episode Description: I was too sick to attend my sister's wedding, so she wasn't expecting me to deliver a speech. Follow Discomfort Zone on Facebook, Instagram, and Twitter See acas…
 
In honor of Dysautonomia Awareness Month, we’re going to discuss dysautonomia and the ways it can present in different people, both on its own and in conjunction with other disorders. What is dysautonomia? Well, it’s a dysfunction of the autonomic nervous system, which tells you nothing unless you know a little bit about how the autonomic nervous s…
 
In the October 2020 episode of the JAAPA Podcast, co-hosts Adrian Banning, PA-C and Kris Maday, PA-C discuss CME articles on cardiac amyloidosis and on sickle cell disease. They also break down a QRS article on hyponatremia and explore the role of antibiotics for dental prophylaxis in patients with orthopaedic implants. Full articles can be found a…
 
We've got an INB Roundtable! Dr. Lee was a minor league mascot, Monica played fetch with coyotes, and Jason blew his chance at hand modeling. Two are true, one is a lie! Get to know the hosts through a fun icebreaker game. Click here for the show notes. Listen and subscribe to: Explicitly Sick with Monica Humancare with Eva Discomfort Zone with Jas…
 
A sneak peak of this week's episode of Humancare Podcast You can subscribe to Humancare on your favorite podcast player, including: Apple Podcasts Spotify Google Podcasts Episode Description Eva was joined this week by Tami Stackelhouse, a Fibromyalgia Coach, fellow podcast host & Author. Tami has Fibromyalgia, Hashimoto’s thyroiditis, chronic dail…
 
Receiving diagnosis like Irritable Bowel Syndrome (IBS), often comes with a stigma. Some believe IBS is a diagnosis a doctor uses to describe digestive symptoms when no serious pathology has been found. Thankfully we are moving a way from this definition. And now we recognize that conditions like IBS involved scientifically proven imbalances in bot…
 
There is an obsession in this world with weight loss. The search term “weight loss” outpaces the search term “fat loss” by leaps and bounds. In fact, on May 3, 2020, “weight loss” reached the most popular search term status on google in The United States. Reaching a popularity score of 100/100. On the same day the term “fat loss” only had a popular…
 
In this episode, Ilana and Rebekah talk with Darlene Shelton, the founder of Danny's Dose. It's a nonprofit dedicated to changing emergency medical protocols for chronic illness and rare disease patients. This conversation was recorded at the NIH Rare Disease Day in Februrary, 2020 -- the last in our series of conversations with patients on the fro…
 
Chronic Joint Pain often leads to a diagnosis of degenerative joint disease (also known as osteoarthritis) and patients are given the array of physical therapy and anti-inflammatories with the hope of delaying and preventing joint replacement surgery. This is a standard approach and joint replacement procedures often need to be redone 10-20 years l…
 
In this episode, Sunni talks with illustrator J.G. Jones, who has worked as a comic book artist for almost 25 years. Jones, who was diagnosed with a type of rare blood cancer, is working on a new project that is bringing attention to myeloproliferative neoplasm patients through a combination of story and illustration.…
 
We've got an INB Roundtable! Monica and Eva are joined by the two new hosts on the network: Jason, host of Discomfort Zone and Dr. Lee, host of Sex and Chronic Illness. The four of us chat about: Our go-to coping mechanisms Striking a balance with news and social media intake Using COVID as a time to reflect The impact COVID has had on relationship…
 
BIG Official Announcement We're now a Podcast Network! That means we now have 4 separate podcasts as part of our Invisible Not Broken Family: Explicitly Sick - hosted by Monica Michelle Humancare - hosted by Eva Minkoff Discomfort Zone - hosted by Jason Herterich Sex & Chronic Illness - hosted by Dr. Lee Phillips We will be continuing to publish ne…
 
In the September 2020 episode, Kris Maday, PA-C, and Adrian Banning, PA-C, discuss CME articles on infectious disease considerations in immunocompromised patients and bronchiolitis as well as necrotizing fasciitis and a QRS on pyelonephritis.
 
In this episode, Ilana has a conversation with Jansen's Foundation president and founder Neena Nizar. Jansen's Disease is one one of the rarest disorders in the world, with Neena reporting only 10 known cases worldwide when she started her foundation in 2017. This interview was recorded in February 2020 at NIH Rare Disease Day. Since then, Neena re…
 
Idan Ravin Esq., MSc, CSCS is an elite performance coach for many of the top NBA players. He is also the author of The Hoops Whisperer and It Takes Patience. Idan has a very unique life journey and also a gift for the craft of improving and fine tuning performance. Whether you are trying to improve your fitness, health, or life situation I think yo…
 
Bile and biliary dysfunction are intimately connected with mold-related illness. In fact, so connected that a key strategy to overcome mycotoxin illness is to help your bile rid of mycotoxin. Bile does so much in our body . Not only is it important in fat digestion and absorption; it also has secondary effects on protecting our gut lining, immune s…
 
In this episode, managing editor Ilana Bean talks with disease advocate Whitney Carter about her journey to multiple diagnosis and how it led her to getting involved patient awareness. Recorded at the NIH Rare Disease Week in February 2020.By waithowdoyouspellthatraredisease
 
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