show episodes
 
The Rest Room is a podcast about living well with chronic illness. I'm Natasha Lipman, an award-winning chronic illness blogger and journalist from London. I've been working with experts to bring you evidence-based guides on a whole host of topics like pacing, exercise, and chronic pain. I'll also be talking to people who live with chronic illness and disability who are doing awesome things and learning how they make it work, as well as digging deep into the businesses and brands that are fo ...
 
Discomfort Zone features immersive stories on chronic illness and disability showcasing our vulnerability, wellness, and resilience. My guests and I find comfort by turning towards discomfort, welcoming it, and laughing at it. I am an engineering graduate who reinvented himself as a podcaster and chronic illness/disability advocate after developing fibromyalgia, myalgic encephalomyelitis (ME/CFS), and postural orthostatic tachycardia syndrome (POTS).
 
Podcast featuring conversations with health entrepreneurs, care professionals, patient advocates, and industry changemakers. What do they all have in common? The mission to humanize healthcare by exploring the disconnect in relationships. --- Hosted by Eva Minkoff. Part of the Invisible Not Broken Podcast Network.
 
Welcome to the because we are a strong podcast. A podcast inspired by stories of struggle and strength. A place where you can feel safe enough to share every part of your rare story. The good, the bad, the happy, and anything in between. Many times those in the rare disease community feel isolated from the rest of the world. rare disease comes with its own set of unique challenges, ones that are hard for the outside world to understand. Through our stories, we can bridge the gap between a la ...
 
A podcast about invisible conditions and chronic invisible illness, featuring interviews with survivors, their loved ones, advocates, and experts in varied healing modalities, from medical to holistic. Hosted by Lauren Freedman, a voice actor, writer, and activist, who lives with Hashimoto’s disease and sleep disorders, Uninvisible uncovers real stories of survival and humanity – complete with laughter. In truth and with candor, we offer solutions – and challenge the world to change.
 
Spoonie Radio is a Chronic Fatigue Syndrome & Fibromyalgia Podcast highlighting effective treatment strategies as well as insight from clinicians, researchers, & advocates. Each show focuses on evidenced-based, practical information to spread hope and understanding about an otherwise invisible illness. This show is brought to you by Dr. Courtney Craig, recovered CFS patient, clinician, and creator of www.drCourtneyCraig.com
 
Derek and Victoria are no strangers to chronic Illness. Beyond Your Diagnosis is a podcast about two strangers with two completely different chronic illnesses who found each other through the power of social media. Join them for the tears, the laughter and the “did they just really say that?!” moments while they both continue to navigate the long and winding road of their chronic illnesses.
 
Check in for a dose of stigma-break, humor-filling, empowerment building life hacks and motivation for all the “medically-adult-ish” young people. The InvisiYouth Chat Sessions: A Video Podcast Series, is part of InvisiYouth Charity. This international nonprofit helps teens and young adults with various chronic illnesses and disabilities gain the right lifestyle programs, empowerment and fun events to learn how to keep living life. Twice a month, our founder, Dominique Viel, will bring guest ...
 
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show series
 
Rachel Otis (she/they) is a somatic therapist, yoga teacher, abolitionist, writer, and pleasure activist who works directly, compassionately and non-judgmentally with the mind-body connection, infusing sessions, groups, retreats, and articles with radical self-love, exploration, and expression. She provides healing pathways of somatically-oriented …
 
CARTOON BOOM PODCAST: This Saturday morning, Joseph and Chris take a look back at all of the cartoons they watched in the year 2020, and hand out their 8 individual, cereal-rific awards. Welcome, everyone, to The 2nd Annual Spoonies! The First Bite Award (Best Intro) The Still Crunchy Award (Most Nostalgic) The Shiny Spoon Award (Best Design/Animat…
 
CARTOON BOOM PODCAST: This Saturday morning, Joseph and Chris watched Donkey Kong Country, from 1996. This was chosen by Alexandra Smith. Thanks, Alexandra…we sure did love the video games! 1. First Episode: I Spy with My Hairy Eye (S1E01) 2. Highest Rated: Kong for a Day (S1E07) 3. Joseph’s Pick: Baby Kong Blues (S1E22) Donkey Kong and his sidekic…
 
WHEN YOU’VE TRIED EVERYTHING TO FEEL BETTER: DR. NICOLE RIVERA "Our biggest mission is to truly evolve how healthcare is being done by making sure we're figuring out the root cause....We want to look at the neurological system. We want to look at the mental, emotional. We want to look at the DNA. We want to look at all of those different avenues to…
 
Hey Peeps ! it's Kristine and I'm flying solo tonight; however, this disease is one that hits both tt and I very deeply. so I am super excited to sit down with veronica. Veronica has been a chronic illness warrior for over 15 years. She has been battling Crohn's disease for 15 years. Crohn’s disease is a type of inflammatory bowel disease. It cause…
 
Samantha Reid is the Digital Director for Patients for Affordable Drugs. Growing up in Illinois, she suffered from a “bad stomach” and weakened immune system, having caught pneumonia nine times by the age of nine. But it wasn’t until she was in her late teens that she sought answers. A diagnosis of Crohn’s disease eventually led her into patient ad…
 
I’m joined by one of my best friends in the world, Colin Gorrie. Or should I say Dr. Colin Gorrie.Colin is a linguist and lifelong language learner. These days he works on bringing knowledge of language and linguistics to a wider audience online. Colin also lives with EDS and experiences a lot of brain fog and fatigue, so I thought it would be a go…
 
Which is better - herbalism or modern medicine? Should you only do one or the other? Join the Bitchy Witchys as they talk about how people view the two and if they can be used together. Buy us a coffee! https://www.buymeacoffee.com/BitchyWitchys Watch us, like and subscribe on YOUTUBE - https://www.youtube.com/channel/UCcFYaQtwUdla6dC2xI0ULpA Suppo…
 
THROWBACK TO OUR 100TH EPISODE: Managing from Mattress with Eva Minkoff and Monica Michelle. In this episode, we talk about our individual experiences & tips for managing our flares on our "bed bound" days. Since the two of us have varying degrees of illness severity and mattress-bound frequency, this episode covers much of the spectrum of experien…
 
David Mitchell has an incurable blood cancer called multiple myeloma. The price of his current drugs is more than $875,000 per year. Like millions of Americans, David needs innovation and new drugs to survive, but he believes drugs don’t work if people can’t afford them. After more than 30 years at a D.C. policy and communications firm, he retired …
 
Taylor Kane is a 22-year-old rare disease advocate and founder of Remember The Girls, an organization dedicated to women with X-linked disorders. Taylor is passionate about fighting gender bias in healthcare, especially for women with rare conditions. Connect with Taylor: PURCHASE YOUR COPY OF RARE LIKE US! Taylors 2 minute rare disease challenge: …
 
Hey peeps! Theresa couldn't make it this week so You're stuck with me! Don't get too excited! This week I am sitting down with Autumn who has five children. 4 boys and 1 girl. Her daughter Story Grace is legally blind and deaf and is unable to walk, talk, or eat by mouth. Autumn uses hiking as a way of bonding with her children as well as therapy b…
 
Body Breakdowns and Self-Love Breakthroughs: Lisa Pachence "I want what's best for my clients and for the people that I serve, therefore I want to strive to be as excellent as I possibly can. So, I think that there's some good in survival mechanisms and there's also a way to shoot for the same goal, but from a place that is empowering, has a differ…
 
This month we’re going to talk about some heavy stuff that a lot of us experience, especially during the holiday season: we’re going to talk with musician Amy McNally about ways she copes with depression and suicidal ideation, both with formal medical and psychological treatment and in ways she deals with it apart from that. Click through for links…
 
Kayla Harley is a certified GYROKINESISⓇ instructor, Optimal Life Breath Pathologist, doula, and energy healer helping dancers, athletes and everyday movers alike improve their quality of movement: for breath integration and to prevent injury. She is an International Practitioner and among the forerunners in the International Association for Blacks…
 
Whitney is a digital marketing and technology consultant and founder of The Pink Zebra Club. She has 3 children who she loves fiercely: a spunky toddler at home and two beautiful children in heaven. When her first daughter Olivia was born with a severe and life-limiting neuromuscular disease, she began speaking openly online about her family’s jour…
 
At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everyb…
 
Does science have anything to do with magick? Join the Bitchy Witchys as they discuss this topic and let's find out! Buy us a coffee! https://www.buymeacoffee.com/BitchyWitchys Watch us, like and subscribe on YOUTUBE - https://www.youtube.com/channel/UCcFYaQtwUdla6dC2xI0ULpA Support our PATREON@ https://www.patreon.com/bitchywitchys Visit our WEBSI…
 
At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everyb…
 
CARTOON BOOM PODCAST: This Saturday morning, Joseph and Chris watched He-Man & She-Ra: A Christmas Special, from 1985. This was chosen by Justin and his mysterious friends. Thanks, everybody! He-Man and She-Ra join together to stop Horde Prime from ruining Christmas for some Earth children stranded on Eternia. VOTE for which cartoon we watch next: …
 
Join us as we launch a brand new series on Uninvisible Pod — INNOVATORS! In this series, we will periodically release episodes including short-form interviews with founders whose work is creating waves of change in chronic and invisible illness and disability. First up, as we dive in to the end of the year and look forward into 2021: Yale graduate …
 
Allies and Advocacy: Spoonies Unite "Chelsea, especially with not having a chronic illness herself. Really did an amazing job of helping me believe that there are humans out there who don't have to experience what we're going through in order to have compassion and empathy and understanding.” – Cassandra Da’Luz Vieira Summary: Eva was joined this w…
 
BabbleOnBrooke is an Inspirational Speaker, Biz + Life Coach, and Invisible Disabilities Advocate who combines her entertainment background and 9-year spinal injury recovery journey, "From Hollywood To Housebound To Healing" to empower others. Follow Brooke on any social media, including Instagram, Twitter, Facebook and Tik Tok @BabbleOnBrooke! www…
 
Welcome to Episode 3 of The Rest Room!In the last episode, we looked at ways to address the barriers that come up when figuring out how to start incorporating movement and exercise into your life.We learned that we need to throw the whole ‘workout’ mentality in the bin, especially if movement is new to you, but we didn’t cover how to get started in…
 
Ending 2020 with motivation, self-love, and excitement for the year ahead? Yes, please! And there is no one better suited to empowering you to seek greatness and improve your fitness than our special guest, Ultra-Endurance athlete, cystic fibrosis activist and online fitness coach, Sophie Grace Holmes. Living with CF since she was four months old, …
 
Another sort of Holiday Special roundtable on gifting for people with chronic illness & disability! JOIN INB NETWORK HOSTS MONICA (EXPLICITLY SICK), EVA (HUMANCARE) & JASON (DISCOMFORT ZONE) FOR A FUN DISCUSSION ON OUR PERSONAL GIFTING IDEAS. “A little effort goes a really long way” – Jason Herterich Gift ideas mentioned throughout the episode: *No…
 
The Humancare Podcast features conversations with health entrepreneurs, care professionals, patient advocates, and industry change-makers all with the mission to humanize healthcare in common. In every episode we offer unique stories paired with education, actionable tips, tricks and takeaways all to help you better navigate healthcare and transfor…
 
About Pamela Award Show Executive Producer | Journalist | Competitive Athlete | Dance Teacher Mentored by PR/Media mogul Michele Elyzabeth, Pamela Price is the Vice President of LATF USA, a daily lifestyle/entertainment news site, as well as the Executive Producer of the acclaimed annual award show, the Hollywood Beauty Awards, known as the ‘Oscars…
 
At the age of 10, Nitika Chopra was diagnosed with a debilitating case of psoriasis. By 19, her joints were entirely inflamed and she was further diagnosed with psoriatic arthritis. From the tips of her toes to the crown of her head, her body was covered in unsightly sores…and for the first five years of her second diagnosis, she was unable to move…
 
When it comes to manifestation in the practice of witchcraft, there seems to be some confusion with some as to what that really is and what it really entails. Is it the same as Law of Attraction? Is one truly "done" when the spell is done? Join the Bitchy Witchys as they discuss some of the confusions surround this topic. Buy us a coffee! https://w…
 
CARTOON BOOM PODCAST: This Saturday morning, Joseph and Chris watched Sonic Underground, from 1999. This was chosen by Chris Perez. Thanks, Chris! 1. First Episode: Beginnings (Origins pt1) (S1E01) 2. Chris’s Pick: Three Hedgehogs and a Baby (S1E22) 3. Highest Rated: Wedding Bell Blues (S1E30) Sonic and his royal siblings seek to find their mother …
 
Jaime Sanders’ journey with migraine has been life-long. From a toddler with abdominal migraine to a wife and mother with chronic intractable migraine, Jaime has learned to turn her pain into empowerment. She also manages her daily life with depression and anxiety, surviving two suicide attempts, along with fibromyalgia, carpal tunnel syndrome, spi…
 
Stephanie was born with Cystic Fibrosis, a genetic disease that primarily leads to irreparable damage of the lungs. In spite of the considerable challenges, Stephanie continued her successful career as a designer all while being a devoted wife and loving mother. Unfortunately, CF started to have a greater impact on her life, forcing her to leave he…
 
Nurturing Relationships through Creative Resilience: Jenni Grover "There's opportunities to play and find joy and creativity, but we have to really look for them, and that goes for this tiny moment in world history of pandemic, it goes for living life with chronic illness - It just helps us feel like there's more to this life than what's right here…
 
Born and raised in South Carolina, 27-year-old Brittany Sumner always felt like she was different than her peers — both physically and mentally. At an early age, she began falling over without explanation, finding herself unable to climb stairs, going cross-eyed, experiencing slurred speech, choking on food, and feeling almost constant fatigue. It …
 
My name is Terry Pirovolakis and on April 2nd my life changed forever. My son Michael was diagnosed with a terrible neurodegenerative disease that will take away his ability to use his limbs and mind. My goal is to cure my son and as many children as I can of this terrible disease. Connect with Terry: @cure_spg50 on Instagram Help the cause: https:…
 
CARTOON BOOM PODCAST: This Saturday morning, Joseph and Chris watched 6Teen, from 2004. This was chosen by Rico.Mortis, via Instagram. Thanks, Rico (‘I like your name.’ -Joseph)! 1. First Episode: Take This Job and Squeeze It (S1E01) 2. Highest Rated: Baby, You Stink (S3E02) 3. Joseph’s Pick: On Your Mark, Get Set…Date (S4E10) Set in a giant shoppi…
 
This week we have a special guest for you all! Ms. Charisma!! We discuss what its like to be a spoonie and practicing witchcraft - what it's like and how you cope. We also discuss things with those who are caregivers who practice as well. Buy us a coffee! https://www.buymeacoffee.com/BitchyWitchys Watch us, like and subscribe on YOUTUBE - https://w…
 
Join Monica, Eva and Dr. Lee for an untamed discussion on politics, human rights, family dynamics and, oh yeah, some holiday stuff thrown in there :p "Take it or leave it - I have an opinion" (all of us in a nutshell) Just a taste of what we talk about: Election results & compassion for human rights Love languages, sex and the "diamond rule" vs. th…
 
2020 a year no one could have predicted. One we honestly weren’t sure how to be thankful for. But once we sat down and thought about it we realized despite the ridiculousness of 2020, without it we wouldn’t have accomplished some of what we have. Sometimes it’s important to acknowledge and be thankful for the struggles. After all, they can get you …
 
Jeniece Dortch is a mom of six, her children ranging in age from 4-16 years. She has a passion for the special needs community that was born when her second-eldest son, Christian Garcia, was diagnosed with autism and epilepsy. She not only saw the need to advocate for these communities, but for the entire family unit (even those who are able-bodied…
 
Intuitive Eating, Body Image Resilience and Self-Trust: Holly Toronto "You are the number one authority on your body. That's what intuitive eating is about, it’s putting you back into the driver's seat.” – Holly Toronto Summary: Eva was joined this week by Holly Toronto, a certified Master Level Coach specializing in body image and intuitive eating…
 
DISABILITY IS A BADGE OF HONOR. Creating Strength and Empowerment for People with Disabilities Erin Noon Kay is the CEO & Founder of Claiming Disability Inc. Erin identifies as a "fierce disabled entrepreneurial woman," with Cerebral Palsy. She uses a walker and wheelchair occasionally, but she believes it's "OK" to look disabled and is working har…
 
EPISODE 1: MEET DR. LEE PHILLIPS! Dr. Phillips introduces himself to the listeners and shares his personal battle with Lyme disease and how he became an AASECT Certified Sex Therapist. He shares with the listeners the purpose of his podcast, and this episode he also discusses the stages of chronic illness and how this will be talked about on future…
 
Hey peeps! It was just Kristine this episode and I am back this week again hosting solo but we have another great episode for you today as I have the pleasure of sitting down with Orah Lasko who is the mother of Luke; Luke has a rare genetic disorder syndrome called Hao Fountain syndrome. As with to many of these rare genetic disorders Jake is amon…
 
IT WAS A KNIGHT TO DISMEMBER... Read by RPG Rabbit (she/her) Special Guest: Carter (she/her) Second spooky Halloween episode even though it's November Music credits! "Believe in the Magic of Halloween by WinnieTheMoog Link: https://filmmusic.io/song/6718-believe-in-the-magic-of-halloween License: http://creativecommons.org/licenses/by/4.0/" "Dreamy…
 
In May 2016, Kelly Cervantes and her family received two life-changing pieces of news: her husband, Miguel, had landed the starring role of Alexander Hamilton in Hamilton: An American Musical in Chicago; and their then-7-months-old baby girl, Adelaide, was diagnosed with epilepsy — and eventually, infantile spasms — a severe form of childhood epile…
 
Natalie Y. Beavers is an award-winning epilepsy survivor, advocate, and founder of the Angels Of Epilepsy Foundation, a non-profit organization that brings awareness, education, and community to epilepsy survivors and their families nationwide. Diagnosed with epilepsy at the age of 5, a seizure while she was driving in 2006 caused a life-changing a…
 
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