show episodes
 
PodcastDX is an interview based podcast series in a “peer-to-peer supportive format." We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ailments. Many of our guests are en ...
 
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show series
 
On this week's show we are speaking with Kristine Hoestermann, the founder of "FindYourRare" and she will be explaining how she was diagnosed with HEDS and where that diagnosis took her! Heeeeere's Kristine! Allow me to introduce myself🦓My name is Kristine (kk). I am the CEO of RARE.™ A brand that was born from my own frustrations following the ons…
 
Dr. Eugenie Hsu is a clinical psychologist by profession and lives in the San Francisco Bay Area with her husband and two children. In 2011 when her son was 8, he was diagnosed and treated for a craniopharyngioma brain tumor: Grateful for his survival but distressed by the many challenges he suffered in the aftermath of the tumor and surgery, Eugen…
 
Brandi McAlexander was born and raised in Kirtland, New Mexico, a small town ten miles from the Navajo Native American Reservation. She is both Oglala Sioux and White Stick Creek. She is happily married to a veteran of two tours to Iraq. Together they have a happy full house with seven children; four girls and three boys. She worked in healthcare a…
 
Today, we have with us today, Sheila Ames a registered nurse in Northern California who has been diagnosed with a rare type of a primary immunodeficiency known as common variable immunodeficiency or CVID for short. At the time of her diagnosis she was working as an ICU nurse and her first doctors order was: no more exposure to infectious patients. …
 
Our guest this week is Shannon Wyatt. Shannon has an extremely rare condition called von Hippel-Lindau Chuvash Polycythemia (we will abbreviate to VHL). Her only symptom that led to finding VHL was that she was diagnosed with kidney cancer at 34 years old, that didn’t even have any noticeable symptoms, it was just an incidental finding on an MRI, b…
 
Lauren, is here speaking with us today about Lysosomal Storage Disease. Lauren has four siblings whom she loves dearly, and graduated in 2011. She worked at a community center until COVID put a hold on social gatherings. She considers herself a social person and is grateful for the chance to get her story out into the world. ​ Lysosomal storage dis…
 
Kim Shields is 38 years old and just finished her masters in social work program. She was diagnosed with FOP at age 15, but it has mildly affected her throughout her life. She is a wheelchair user, but she doesn’t let that slow her down. She is working on a plan to open a nonprofit in the future to help with access issues for those with disabilitie…
 
Board Certified in Family Medicine, Dr. Kelley was among the first physicians to become Board Certified in Integrative Medicine. She has studied the causes, effects, and treatments of Lyme Disease extensively, and lectures nationally on this and other topics. Dr. Kelley graduated from The Ohio State University College of Medicine and completed her …
 
Myostatin-related muscle hypertrophy is a rare condition characterized by reduced body fat and increased muscle size. Affected individuals have up to twice the usual amount of muscle mass in their bodies. They also tend to have increased muscle strength. This condition is not known to cause any medical problems, and affected individuals are intelle…
 
Britt Clark is a patient advocate and the founder of Lupus Lyfe, a blog about living with lupus. She is also a lupus patient leader for WEGO Health and actively participates in discussions and panels advocating for chronic illness warriors. She has battled lupus, fibromyalgia, trigeminal neuralgia and recently stage 1 kidney cancer. In her spare ti…
 
Myisha is the ceo of @gameofcrohnsandchronicillness Facebook group and Instagram. Myisha is a 2019 WEGO Health Awards finalist and WEGO Health top 10 rookie of the year 2020 this year. ​ Myisha have been nominated for 10 WEGO Health awards. Myisha started her Facebook group gameofcrohnsandchronicillness to help others feel less alone. ​ When Myisha…
 
In this episode we will discuss Halloween Safety during COVID ​Fall celebrations like Halloween and Harvest Day are fun times for children, who at one time could dress up in costumes, enjoy parties, and eat yummy treats. These celebrations also provide a chance to give out healthy snacks, get physical activity, and focus on safety. ​Check out these…
 
Two Co-Hosts discuss injectable neurotoxins as a medical treatment, especially for migraines. Neurotoxins are injected around pain fibers that are involved in headaches. It enters the nerve endings around where it is injected and blocks the release of chemicals involved in pain transmission. This prevents activation of pain networks in the brain. I…
 
Volunteering can help you make friends, learn new skills, advance your career, and even feel happier and healthier. With busy lives, it can be hard to find time to volunteer. However, the benefits of volunteering can be enormous. Volunteering offers vital help to people in need, worthwhile causes, and the community, but the benefits can be even gre…
 
Even though we often feel Physicians are 'super-heroes" during times of extreme stress even these heroes need support! Dr. Jackson is here today to talk with us about the care and support that physicians can give one another. The current pandemic is such a stressful time for all of us, have you considered how hard it is on the front line workers? ​…
 
Have you ever felt overwhelmed at trying to balance family and life? Dr. Tameka Blake is here with us to discuss the importance of achieving a balance and gives us an idea of how a physician might attain balance between running a business and being a doctor. Dr. Blake is originally from Brooklyn, NY. In 2001, she attended Cornell University graduat…
 
Chronicling, or journaling is an important part of the health care field! For patients or the professional medical team looking after patients, a great deal can be gained by simply writing down your experiences, symptoms, thoughts or ideas! We don't often get a viewpoint form the medical team members and were very happy to include "The Women in Whi…
 
This week we are talking with Doctor Kat Ogle on discrimination in healthcare. From medical students to doctors and naturally the patients in between, how common is racism in the medical community and what can be done to end it? Dr. Ogle doesn't hold back on this important topic! Dr. Kat Ogle| Washington DC Emergency Medicine Physician Author ​ Dr.…
 
An upper endoscopy is a procedure used to visually examine your upper digestive system with a tiny camera on the end of a long, flexible tube. A specialist in diseases of the digestive system (gastroenterologist) uses an endoscopy to diagnose and, sometimes, treat conditions that affect the esophagus, stomach and beginning of the small intestine (d…
 
FINDING THE RIGHT Mental Health Professional isn't difficult—and it shouldn't be. There still exists a stigma of sorts, that taking care of your mental health is taboo and people may be reluctant to even ask about care. When you put your life in someone else's hands, you need to feel confident that this is an individual with enough smarts, qualific…
 
I am Lwimba Kasongo and I have been living with sickle cell for over 30 years! I call myself a warrior because i have come this far despite the challenges that come with living with Sickle cell . The pain, the stigma, the in an out of hospital , the medicines all make it a hard journey. Living with Sickle cell is a daily battle field but to come th…
 
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