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In "The Patient is In,” the StuffThatWorks podcast, community members recount their personal stories about dealing with chronic illness and disease, and share how a mix of strength, courage and science helped them through. Hear stories showcasing what’s possible when people are empowered to advocate for their own health, or the health of their loved ones.
 
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Read more about Paula Dumas here. Related Articles and Resources: MigraineAgain.com Migraine World Summit The New York Times: New Home for Migraine Sufferers Washington Post: The pandemic is a headache — and for some people, it’s causing migraines ----------------------- StuffThatWorks is a crowdsource-based research platform empowering people with…
 
More from Denise Fixsen "I have dedicated my life to HS and to helping others who suffer. I have been an HS advocate for 29 years now and for 28 of those years an HS patient advocate for others. I have been to doctors appointments, surgeries, and ER visits with them and helped them navigate insurance issues, get proper treatments etc. I have met, h…
 
Related Articles: The New York Times: Let the Mind Help Tame an Irritable Bowel Washington Post: Exploring the Mind’s Power over the Body ----------------------- StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out …
 
Related Articles: Yale Medicine: Ventilators and COVID-10: What You Need to Know Washington Post: First, Coronavirus Infections Increased. Then, Hospitalizations. Now, Deaths Are on the Rise The Atlantic: Long-Haulers Are Redefining COVID-19 ABC News: Long-haul COVID-19 patients will need special treatment and extra support, according to new guide …
 
More from Maya Wolff: Maya's Instagram account where she has been documenting her struggle with Long Haul COVID: Maya's website More on Long Haul COVID-19: Body Politic's COVID-19 Support Group Articles: The Atlantic: Long-Haulers Are Redefining COVID-19 ABC News: Long-haul COVID-19 patients will need special treatment and extra support, according …
 
Erdely works at Ctrl M Health as head of content. It's a new platform and app which offers strategies for those who suffer from headache and migraine. In the past she was a journalist, focused on long-form narrative writing, especially about crime, health and social issues. Related Articles and Resources: The New York Times: New Medications for Mig…
 
More on Joe Landson and Chronic Fatigue Syndrome: Joe's 2014 public comment to the The Chronic Fatigue Syndrome Advisory Committee which advises the U.S. Department of Health and Human Services Further public comment Articles on CFS/ME: The New York Times: Getting it Wrong on Chronic Fatigue Stat: Why We Shouldn't Call it Chronic Fatigue Syndrome M…
 
More About Natalie Hayden Natalie is a former TV news anchor and reporter living in the Midwest. Her mission in life is to be an advocate for those battling inflammatory bowel disease and to show that a chronic illness doesn’t have to dull your sparkle. Natalie was diagnosed with Crohn’s disease in July 2005, two months after graduating from colleg…
 
More About Annette Leonard For Annette, what started out as mono, morphed into CFS, then fibromyalgia, then a life-threatening cluster of autoimmune diseases called antisynthetase syndrome. She writes, "living with pain and uncertainty have been unwelcome educators. My illnesses do not define me. If health is the absence of disease and wellness is …
 
Lynda Pickett and Laura Murphy live on opposite sides of the globe and have never met in person, but they consider each other the best of friends. They both suffer from Premenstrual Dysphoric Disorder, or PMDD, a condition that at times has upended both of their lives. Their connection has been a lifeline, getting one another through their darkest …
 
After his family's battle with rhabdomyosarcoma, Oded launched MyChild’sCancer.org, a nonprofit dedicated to providing personalized mentorship, education and resources to parents and caregivers of children with cancer. My Child’s Cancer developed a unique database that captures personal accounts of family's experiences with different treatments, me…
 
Shortly before the coronavirus pandemic swept the United States, Dr. Jo Shapiro was training fellow physicians at an Air Force base in Dayton, Ohio. After returning home to Boston, Jo, a head and neck surgeon and a professor at Harvard Medical School, started to feel congested. But it was no ordinary congestion. She describes it as the weirdest upp…
 
More from Marjorie Ingall Marjorie Ingall is a writer and editor at Tablet Magazine and author, most recently, of “Mamaleh Knows Best.” http://marjorieingall.com/ Marjorie's Essays on COVID-19: On Recovery and Rainbows, Tablet Magazine Plagues 10, Covid-19: We're sick, and the meaning of this holiday seems more potent that ever, Tablet Magazine Mor…
 
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom. Learn more about StuffThatWorks. We're using crowdsourcing to gather data and figure out together which treatments work b…
 
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom. Learn more about StuffThatWorks. We're using crowdsourcing to gather data and learn how COVID-19 affects those of us with…
 
StuffThatWorks is a crowdsource-based research platform empowering people with medical conditions to transform their experiences into an organized knowledge database aimed at figuring out which treatments work best and for whom. Learn more about StuffThatWorks. We're using crowdsourcing to gather data and figure out together which treatments work b…
 
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