052: Surviving to Thriving: Transcending Chronic Illness

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By Bonnie Marcus. Discovered by Player FM and our community — copyright is owned by the publisher, not Player FM, and audio is streamed directly from their servers. Hit the Subscribe button to track updates in Player FM, or paste the feed URL into other podcast apps.

Description

After suffering for more than a decade from a rare autoimmune disease, dermatomyositis (DM), a progressive muscle weakness disease, Lisa Sniderman, aka Aoede, has persevered by obsessively turning to creativity to express herself and as a healing path. An award-winning, quirky, folk-pop artist, playwright, filmmaker and author, Aoede’s life purpose is also becoming a light in the darkness and a muse, offering support, compassion, inspiration, connection, and encouragement to those who need it most-especially those experiencing transformations: illness, disability, or unexpected life challenges. Aoede is a living example that it is possible to live a life filled with hope, passion, and joy, even if the shape and substance of our dreams change.

What You Will Hear in This Episode

  • Lisa’s personal journey battling and managing dermatomyositis and its life altering effects as well as the challenges of going from being completely independent to totally dependent.
  • The SPOON Theory: Living with a limited number of spoons
  • The importance of finding balance between your passions and self care.
  • Aoede’s discovery of how to use her creativity to help people process their losses or transformations and the importance of going through the grieving process.
  • Discovering balanced wellness
  • Tips on how to move from surviving to thriving
  • 7 stages of grief and 7 stages of thriving

Quotes

  • “Creating and creativity enables me to not focus on being sick and the darkness…...it gives me purpose and meaning. It reminds me I am not my illness.”
  • “My illness is a continuing journey.”
  • “Whatever your self care and needs are, attend to them. Don’t have guilt over that because sometimes to do that means that you’re going to be able to be more present and able to be there for yourself and for others.”
  • “I have to allow myself to grieve”
  • “Just allow yourself to be open to the experience, and whatever is coming up for you, sit with it, cause that, to me, is what grieving is about. It’s not linear, it’s a journey, it’s not a one time event”

Mentioned

A Light in the Darkness

The Grieving Project audio book

Myositis support and understanding

Twitter / facebook @aoedemuse

@aoedemusemusic

70 episodes