469 Chronic Health Issues - Karolyn Gehrig


Manage episode 249927557 series 4031
By Paul Gilmartin. Discovered by Player FM and our community — copyright is owned by the publisher, not Player FM, and audio is streamed directly from their servers. Hit the Subscribe button to track updates in Player FM, or paste the feed URL into other podcast apps.

Karolyn suffers from Ehlers-Danlos Syndrome, a connective tissue disease that affects her joints and internal organs as well as being diagnosed with an inoperable brain tumor. She rarely goes more than two weeks without a visit to the hospital. She's the creator of #HospitalGlam, a movement that utilizes photography and fashion to create awareness of invisible injuries and help empower patients. Topics discussed are PTSD, sexism, the difficulties of dealing with chronic pain and unresponsive doctors, finding a community online of "engaged patients" with the same diagnosis, and self-care.

More About Our Guest

Follow her on Instagram @KarolynPRG

Her website is www.KarolynGehrig.com

The archived Tumblr site referred to is still at www.hospitalglam.com

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