Narcolepsy 360: Matt Hieb


Manage episode 223672039 series 2127086
By Claire Crisp and Wake Up Narcolepsy. Discovered by Player FM and our community — copyright is owned by the publisher, not Player FM, and audio is streamed directly from their servers. Hit the Subscribe button to track updates in Player FM, or paste the feed URL into other podcast apps.

Matt Hieb is the father of Madi, a child living with narcolepsy. In this episode, Matt recounts the journey on getting Madi properly diagnosed with narcolepsy. She was five when her symptoms started, so doctors didn’t take her symptoms as signs of a sleep disorder.

Since Madi’s diagnosis, the Hieb’s have been learning their new “normal”. Matt shares first-hand experience advocating for Madi in her school, to her doctors, and even to Madi herself. He touches on how narcolepsy effect Madi socially and how they have started multiple fundraising initiatives to promote awareness and offset travel cost for CCK.

Matt recommends two Facebook Groups- Parents of Children with Narcolepsy (United States) and Online Auction to Support Camp for Children with Narcolepsy

You can follow us at @narcolepsy_360 on Instagram and @wakeupnarcolepsy on Instagram, Twitter, and Facebook. Let us know your thoughts about this episode by using the hashtag #narcolepsy360 and please rate and review us on iTunes.

44 episodes