show episodes
 
My Soul Delights is a Catholic podcast and programme exploring the beauty of our Christian faith and the way in which God's love restores and renews us. If you would like to contact us, email us at msdcatholic@gmail.com.
 
Illuminating the invisibilities of autoimmune disease. Designed to bring voice to HSCT journeys – highlight the snowflakes (individual experiences) and recognize our superpowers – because we are as unique in our HSCT journey as we are in our experience with autoimmune disease.
 
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show series
 
Warrior: Paul WheelerAI: Secondary Progressive Multiple SclerosisHSCT: April 10, 2017Superpower: DancingHave you experienced the compassion of humanity? Is your approach to life with disease more of the “cup half empty” or “half full” mindset? Just how full is your cup?As someone who prefers “research to the nth degree” about medical decisions, Pau…
 
Warrior: Jarrod SchlipfAI: Multiple SclerosisHSCT: November 2014Superpower: Patience How much effort/time/money has been spent battling autoimmune disease? What is your contribution to the outcomes that you are seeking? How committed are you to making time to build habits that nourish your mind, body and soul?Tracing his 17 year experience with MS …
 
Warrior: Tammy Kazen-RichertAI: Primary Progressive MSHSCT: 2013, AA Maximov Hospital, Moscow RussiaSuperpower: Incredible hulk-type shifts between calm intention and strength to power throughHow intentional are you about making memories? Which side of the coin are you on? Who are the people in your life that you can count on as running partners?Af…
 
Warrior: Allison CarrAI: MSHSCT: 2014/15, Northwestern Memorial, Chicago ILSuperpower: SurvivalTo what extent do your doctors have your best interest in mind? Does the medical community you depend on have accurate information about HSCT? After suffering symptoms without a diagnosis for twenty years, Allison felt completely ignored by her medical co…
 
Warrior: Keri HuffAI: Tumefactive multiple sclerosis HSCT: 2010Superpower: self-advocacyWhen you try to advocate for your health and doctors turn you away, how do you persist? Have you ever reflected on how much time you have? Where do you find beauty each day?At just 28 years old, Keri started experiencing odd symptoms that countless doctors ignor…
 
Warrior: Bethany PappalardoSnowflake: Multiple SclerosisHSCT: 03/08/05Superpower: heightened awarenessWhen you need a different course of action, how long will you bide your time? How confident are you among judgement, shock and awe? Will you be ready once you hit rock bottom?Having so many family members plagued with autoimmune disease, Bethany ha…
 
Warrior: Eileen HushionSnowflake: Multiple SclerosisHSCT: 01/05/17Superpower: Knowing you have the rest of your life to look forward toHow much fear do you have when facing uncertainty? How do you adjust when riding a roller coaster? What does normal even feel like? Despite years of debilitating fatigue and cycling through nine different disease mo…
 
The prayer known as St Patrick's Breastplate is attributed to the great saint, St Patrick and it is considered a prayer of protection. The words of this prayer remind us that we arise each day through the strength of Christ with His protection as our shield and His wisdom to guide us. Music Credits: Inspirational Innovation by Ashamaluev Music Cont…
 
In this episode we look at the Miraculous Medal, a story that has many interweaving threads and contributes many examples of the providence of God and the closeness of our Blessed Mother Mary. The Miraculous Medal was a revelation of Our Lady to a young sister called Catherine Laboure, later to be declared a saint. St Catherine was born in 1806, Fr…
 
Warrior: Brooke SlickSnowflake: Multiple SclerosisHSCT: May, 2013 in Moscow, RussiaSuperpower: PatienceHow do you navigate your diagnosis? Would you describe your perspective as positive or negative? How do you normalize your disease? After years of experiencing symptoms, Brooke was diagnosed with RRMS in 2006 and cycled through various disease mod…
 
Warrior: Leta KriegerSnowflake: Secondary Progressive Multiple SclerosisHSCT: 07-08/18Superpower: Support from husband and friendsHow affiliated are you with your autoimmune disease? How connected are you with your community?After living with MS for nearly 40 years, when Leta first heard of HSCT while watching the BBC on vacation, she researched it…
 
Snowflake: Multiple Sclerosis and Lyme DiseaseHSCT: anticipated by June, 2019Superpower: body-knowingHow does one come to terms with the brutality of multiple sclerosis? How many disease modifying drugs have caused you significant complications? Do you know what it feels like to live a life without a chronic disease?After seeing too many doctors th…
 
Warrior: Bonnie McKenzieSnowflake: Multiple SclerosisHSCT: 7.10.18Superpower: divine positivityHow thick is the fog on your brain? How clearly are you able to think and plan? When gearing up for a significant procedure, how well do you prepare for recovery? After years of experiencing symptoms without answers until finally receiving a diagnosis of …
 
Warrior: Jay BlankenfeldSnowflake: MS CaregiverHSCT: March 18, 2018Superpower: “Knowledge we could not do it alone”How do you shift focus from self to other when faced with taking on the role of caregiver? When you ask your neurologist about HSCT as an option for treatment, what is their reaction? Do you have what it takes to construct space for su…
 
Warrior: ChrisSnowflake: CIDP (chronic inflammatory demyelinating polyneuropathy)HSCT: August 14, 2018Superpower: ability to walk againHave you ever lingered on the brink of life? Or wondered why diagnosis by exclusion takes so long? How much energy would you have to spin your wheels?Meet Chris, a physical therapist familiar with physical movement,…
 
In a special episode of the Poetry Podcast, Kimiko Hahn, Monica Youn, Paul Tran, and Megan Fernandes join Kevin Young to read their work, and to discuss Asian-American poetics and the role of poetry in our tumultuous times. Kimiko Hahn, a distinguished professor at Queens College, City University of New York, has received a Guggenheim Fellowship an…
 
Warrior: Alison CoatesSnowflake: AIMS CharityHSCT: CaregiverSuperpower: DedicationHave you considered the possibilities of traveling abroad to pursue HSCT to halt your autoimmune disease? Are you striving to overcome obstacles like funding or researching HSCT? Meet Alison, a caregiver for her warrior husband who was diagnosed with multiple sclerosi…
 
AI: RRMSHSCT: Chicago, scheduled in March 2019Superpower: walk with GodWhere do you find confidence to move forward? How do you take the reins and find the right mindset? Who do you consider to be family? Join us along Katie’s Hope Journey and learn from this interview with our first HSCT Hopeful. After spending 9 years battling multiple sclerosis,…
 
Johny Pitts talks to Jon McGregor about his latest novel Lean Fall Stand, inspired by a trip to Antarctica. Opening with sparse, barely describable landscape in the midst of a storm, it follows Robert "Doc" Wright's recovery in the aftermath and sensitively examines heroism, modern masculinity and the failure of words.Chester Himes is an often over…
 
*This episode contains content that may be alarming to some listeners, including mentions of suicidal ideation. Please check the show notes for more detailed descriptions and take care of yourself*Warrior: Cassidy V. ChapmanAI: Multiple SclerosisHSCT: July 15, 2019Superpower: Passion for bringing awareness to HSCTTo what extent are you an over-achi…
 
Elizabeth Day talks to Chris Power, writer of the short story collection Mothers, about his debut novel A Lonely Man. Robert Prowe is a struggling writer living in Berlin with his wife and two young daughters. One night he meets Patrick, a stranger with a story to tell, who is a ghostwriter for a Russian oligarch who is now being followed. Robert f…
 
In this episode, we look at the story of Our Lady of Lourdes and St Bernadette. In 1858, Our Lady appeared to a young girl called Bernadette Soubirous, at the grotto near to Lourdes, at Massabielle. Bernadette came from a humble family who were familiar with poverty but her interior life proved to be a rich source of blessing not only reserved for …
 
Warrior: Rachel GalleryAI: Chronic Inflammatory Demyelinating PolyneuropathyHSCT: Oct 19, 2020Superpower: EmpathyDo you consider yourself a lucky person? How often do you receive treatment for autoimmune disease? How layered is your circle of support?After spending nearly a year with strange symptom progression, a neurologist was finally able to di…
 
Johny Pitts visits his local bookshop, Review in Peckham, as it prepares to reopen and talks to manager Ben Pope about missing bookseller recommendationsNaomi Ishiguro discusses her debut novel Common Ground, about a friendship across a cultural divide and the importance of open space for everyone.And we reflect on making room in our homes for Spri…
 
Warrior: Erin SchoenleinAI: Multiple SclerosisHSCT: March 15, 2020Superpower: energy to help other peopleHow wide is your view? Do you know what it feels like to be well? For how long have you been distanced? Having been diagnosed with an autoimmune disease in high school, Erin is no stranger to advocacy for well-being and the importance of spinnin…
 
In this episode, we look at the meaning of Easter and its subsequent meaning and impact for all of humanity. The life, death and resurrection of Jesus reveal God's plan for humanity, one that is not confined to one place or time. The hope and glory of the resurrection is the focal point of our Christian faith, and a revelation of a God who is a God…
 
Warrior: DeWayne DurrAI: Multiple SclerosisHSCT: Oct 29, 2020Superpower: ConfidenceHow supported do you feel? To what extent do you think about each step that lies ahead? Continuing from where we left off in this two part episode, tune in to learn from DeWayne as he shares more about his experience navigating his return to work, changes with his di…
 
Warrior: DeWayne DurrAI: Multiple SclerosisHSCT: Oct 29, 2020Superpower: ConfidenceCheck-in with DeWayne to hear more about his experience as the first patient to receive HSCT for Multiple Sclerosis at the Cleveland Clinic. With so many details about his experiences with the myeloablative protocol of the BEAT-MS study, including securing insurance …
 
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